This is something I've been thinking about as well. My DS doesn't show any sign of gluten intolerance so no rush, but if the blood test suggested an issue, I would go for the endoscopy. You need an endoscopy for an "official" diagnosis and to join the Coeliac society etc.
My DS2 has recently went through this a year ago. It was straight for the gastroscopy /endoscopy as that is the best way to get a 'true' diagnosis. The blood test is not always accurate I have been told. After DS2 has the endoscopy I was referred to a dietitician, she is one who specialises in my DS2's condition and also coeliacs, she is in her 70's and worked at the RCH for many many years and has also written books on the condition, her name is Dorothy Francis and she is amazing. She explained she gets quite angry and frustrated when she hears parent's talking of only a blood test for coeliacs as it is not conclusive.
We saw a paedatric gastro guy at Cabrini. DS2 went fully under as the specialist took biopsy's down his esophagus as well as checking out his intestines and further down. Well worth in my opinion to get the correct diagnosis.
It's never pleasant seeing your little one's go under a general or come out of it distressed if they react this way, the end result is worth though.
Just one other thing to mention is if this is the diagnosis the specialist is looking for, it is important not to exclude the gluten or wheat from the diet prior, as they need to see the 'true' reaction and damage unfortunately.
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