Thanks k4t I know I sound like a dreadful demanding parent but I am honestly a massive supporter of the public health system, and this is why I initially chose the public system rather than the private system. I'm just at my wits end because DS1 doesn't seem to be improving and everyone is telling me something different. I just want to know that someone is overseeing his case and he doesn't get lost in the system. I'm very worried he will have permanent nerve damage and nobody is listening to my concerns