Thanks Abigail. I was hoping you'd see this. Even though I remember you warning me about 12 months ago :/
He is now under the care of a behavioural paed in Perth. I plan to ask her about video conferencing, so we can continue seeing her. I haven't met one this good ever. The one dd see's closer only really does check ups. I've explained anxieties etc to her & all she's done is recommend books.
DS is now seeing a clin psyc weekly for the same reasons. He is more severe than her, but I do think this paed is much more proactive.
I do believe it is mostly behavioural. He would avoid using the toilet at day care at 2.5 even for a wee. I don't think this is normal. It makes sense with all his mental issues though.
He isn't in pain... But now maybe it is time to see a specialist just in case. We did see a continence nurse, she explained a lot of this I didn't know before & gave us the chart, but we didn't hear back from her. And she's the only one remotely close (2 hours).
Now that I know the reasons for movicol I can at least explain it to my mother who is really good at making me feel like crap about it... It's disgusting, that's not normal, years? No that's ridiculous. Cheers ma.
*sigh* I'm going to put in for carers allowance. Try help with the costs of travel. 120 k round trip for psych weekly, 100 k round trip & over night for paed (iptas covers for $200). Then the toilet paper/hot water etc I can't afford.
I am way more onto it & understanding than I was last time. I know now I've really gotta do it right this time.
He was having the movicol with tea. Mum suggested cordial. I only ever allow water & milk. And have had to really watch the milk intake because that's all he was eating/drinking for a day or 2 last time.
He may not be drinking enough water. So I did think one big drink of cordial after school, just to get a decent amount of fluid into him might be ok. He does eat a lot of fruit, another thing I struggle to afford at the moment. Other than fruit, meat & bread though.. He's a really really difficult eater. I try to get whole meal over white for crumpets, wraps etc. they're easy. Bread is a bit of both, but mostly white. It's the only thing that's no good that I haven't cut from all their diets.
I'm not dealing well at the moment. Really struggling with the lack of support right now.
Careful you balance the water with the amount of fibre, to much fibre with too little water has the opposite effect to what you're aiming for.
We use juice for our osmolax, the dentist hates it, I don't care, it's the lesser of two evils at the moment. My motto is whatever works.
Four years on and I know who I can and can't talk to about these issues. Those who have seen him at his worst don't question it. And I have a couple of other friends who have kids with the same long term issues. You know where and how to find me if you need to chat.
Ds isnt a particularly anxious child but until recently would not toilet outside of home. It will get better but it takes time. Hang in there.
Re: Encopresis
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