Marfan syndrome

[Arimeh]

ok - back - and he is dictating over my shoulder as I type:-

He was always told that Marfans Syndrome was essentially if the body grows and your cardiovascular system can't. Sort of like veins and arteries are therefore stretched and are thinner than they should be. Therefore - it puts a strain on the whole system, if your diet is poor then your chance of having clogged arteries is higher, usually they don't exercise because its too dangerous (that is usually the extreme cases)

Of course with any syndrome it has different severities - the highest level of it doesn't have a very long life expectency - of course - that is MOST severe. Most people with it do undergo treatment of some sort, usually meds.

A person with severe marfans will usually only get to about 45 years old - once the heart goes then you are basically stuffed.
He said to google it cos he didn't research it himself - he was just told this by his doc when he underwent testing for it. He went for testing because some of the telltale signs of the disease he had - ie, like his fingers were longer than his palms - lots of tall people get tested. If they have narrow shoulders - that is also a telltale sign of it. Just out of proportion really.

He is really tall, and had really long fingers (not so much now) but he is in proportion - so he didn't have it. And having a high palette as well.

I'm sure my kids will be tested for it at some point in their life.

Thats about all he knows.