I went to the hospital the other day to get the results from the biopsy.... the results from the magical test that they told me will give me all my answers... But the tests have been pretty much pointless and I still have no answers... The results from the biopsy suggest that my DS is pulling his hair out, even though his hair is not long enough to be pulled out. The results suggest that my DD is not necessarily pulling hers out, but there is nothing to indicate what the actual cause is...
So it is completely opposite to what was suggested before the biopsy when they thought that DD was pulling hers out but DS was caused by something else.
They have ruled out Lupus and Collagen issues.
I feel like I am wasting mine and my childrens time with all this and we are back at square one. They have given a prescription for the same cream which they gave me months ago to use, which hadn't helped.
I am slowly loosing faith in the medical system, as I had to take my DD who is nearly 11 to the urology clinic at the same hospital. She has been wetting the bed everynight... They sent me an SMS the other day to remind me about the appointment and said it is important to attend because they have booked her in for tests... When I told the doctor about the message, he had no idea what I was talking about. It wasn't until I showed him the text message that he bothered to even check the system. Must be a mix up he says, there are no tests booked. I am sent away with a prescription for tablets that have already been trialled and double dosed for 4 months with no success at all... I have been trying to find answers for bedwetting for 2 years now, dealing with the hospital for about 8 months, and still have gotten nowhere. I have been dealing with hair loss for over a year now, through the hospital for over 6 months, and have gotten nowhere... What does one do???
Our peadiatrician is even more confused than I am... !
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