I met little Ivy a year or so ago and she is such a treasure. I am so so glad the treatment has been approved. That is just the best news ever! to Tiff and Ivy. Yay!
That is just fantastic. WTG girls and guys. What an awesome response and how very fantastic for Ivy, Tiff and their family. I hope this is a huge step in easing Ivy's discomfort and pain.
Tiff, Dave & family, I am so THRILLED for you! Can't wait to hear the updates from you Tiff at the hospital and may it be the last time you're in there with Ivy for a very long time
Just goes to show the power of people. Thanks Kate for working with the mods here to have this thread!
Just thought I'd add a post in here, and I hope it is ok with Tiff - I just know that a lot of you would be interested to hear how Ivy is getting on...
She has had three infusions of the IVIG so far. They are pretty tough for her little body to cope with, and often the nights following the infusions are rough for both Ivy and her mum and dad. Her reaction is strong and a little scary particularly within the first 24 hours I think.
However, it does seem to be helping her. She now has a 'care plan' and the most wonderful news is that she is enrolled and has been to orientation for preschool next year
Ivy still struggles with very serious ill health. There are no doubt many more battles to be overcome just yet. But she is such a strong girl, a real fighter. And her parents are the most amazing people I know.
Thanks again for your support, everyone. It has meant a lot.
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to Tiff and Ivy. Yay!
Can't wait to hear the updates from you Tiff at the hospital and may it be the last time you're in there with Ivy for a very long time
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