Thanks Nickle,
We are at the stage of getting a blood test done, which the doctor initially said no urgency but after reading everything I have from (coeliac society website) I am thinking might need to get onto it sooner and if they do need to do a biopsy it will need to be done under full anestetic (she has multiple disabilities and will not stay still for anything) and she is due for some dental surgery in the coming months so will fit in with out needing extra procedures.

She did have some unexplainable vomiting today whilst at the RCH about 5 minutes after leaving the doctor.

As much as it may cause problems I will be making sure we maintain her gluten intake until it is confirmed.

Thank you (I dont know if I am making much sense at the moment - I am very tired)