My friend joined heartkids when pg with her twins and found them absolutely fabulous, they helped her tour NICU, answered millions of questions and put her in touch with other mums. She has since done fundraising for them as she was so blown away by their support.
Hard as it would have been to see those photos imagine how much harder it would have been seeing it for the first time on your own tiny baby.
Huge hugs to you at this time.
Heartkids is fantastic. I know a gorgeous girl whose little bub went through it all when she was only tiny. Such a shocking thing to go through but I agree that you will be a little more prepared and won't have the inital shock like you are going through now. All such normal feelings, so I hope you're not feeling bad at all as it is only normal.
We're all here each step of the way, so lean on us whenever you need
I'm sorry your little boy has to deal with these things skybie... it must be very scary for you and DF. I hope you can find some people who have been through this who can hold your hand and give you some idea of what to expect. We are all here for you too xxx
My heart goes out to your and your DH. My DD had closed heart surgery when she was 12 weeks old and 4kg. While it is minor surgery compared to open heart surgery, I know what you are going through to an extent. The ventilator, the monitors, the wires, everything. It was a fairly intense time. It is a year since DD's surgery now. DD did not want to start breathing on her own after the operation which was really scary.
PM me if you want to chat about the hospital experience or anything.
One thing that was really good was having a really close support person for ME. My DH was there obviously but he closes off, and luckily my mum came from interstate for a week and a half. I would have found operation day too much if I did not have her support as I am the "strong" one in the marriage.
I only took one photo, the day before we went home, and it was of her scar. I did not want a reminder of the machines.
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Life just isn't fair is it?!
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