My heart goes out to your and your DH. My DD had closed heart surgery when she was 12 weeks old and 4kg. While it is minor surgery compared to open heart surgery, I know what you are going through to an extent. The ventilator, the monitors, the wires, everything. It was a fairly intense time. It is a year since DD's surgery now. DD did not want to start breathing on her own after the operation which was really scary.
PM me if you want to chat about the hospital experience or anything.
One thing that was really good was having a really close support person for ME. My DH was there obviously but he closes off, and luckily my mum came from interstate for a week and a half. I would have found operation day too much if I did not have her support as I am the "strong" one in the marriage.
I only took one photo, the day before we went home, and it was of her scar. I did not want a reminder of the machines.
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