I can sympahise we you as we too had a hard time of Severe REFLUX.

They all say it I know - it does get better, but that is so hard to believe that there is any light at the end of the tunnel. I was one of those, until we went to hospital numerous times and saw less fortunate kids that DO NOT grow out of their condition. This was the turning point for me, as more often then not I was so down and out about it all and stressed all the time. But hey who wouldn't be when you child refuses to feed. We went through a really bad patch at 5mths where Lachlan would not feed and would only feed half ok when asleep. He would kick and punch me and would not attach to my boob at 8 weeks, it was so upsetting. So for 2 months he was tube fed due to the fact he was failing to thrive, but not dehydrated because of what I was doing through the night. From tube feeding we were then over extending his belly, so then we have been through an extended period of over extension of his belly. He would power vomit his whole bottle of 120ml. This is why we were in hospital, because initially they were not sure why these power vomits were happening. But looking back this was the reason and it definitely seemed like a never ending battle. You tube feed them, they are sick and still loosing weight, what tha..... We had to play with qty and timing just to get it right = no vomits.
The continuous feeds overnight were a shocker, we had to set our alarm through the night to change the bottle in the machine and even then it was scarey because he has never vomitted in his sleep and this was making him choke and gag in his sleep. He slept in our room for months on end until I was confident he was ok again.

To date, we have had a barium swallow and xray and ultrasound on his tummy, blood tests galore and an endoscopy. Luckily no fundo, but they were talking of it.

Anyway I feel like I could talk all day on this issue, to this day he is still on 30mg of Losec and 40mg of Domperidone (Domperidone is a drug to help them stop vomitting). We give him 1ml of Losec in the morning and 2ml at night and that helps, but he still wakes through the night at times. We proabably have 3 good nites a week. The domperidone is 1ml x 4 times a day.

He is still a bad feeder with solids, but I guess he is always going to be small and I am sick of fighting him. He weighed 8.24kgs at 12 mths and he is nearly 13.5mths old and think he weighs 8.5kgs. It is strange though my paed always told me that Lachlan just mustnt like milk and that he would be great on solids. That time came and no still not good on solids (although we have had peaks - must have been growth spurts), but now more then ever loves his milk, go figure. What makes it worse / harder is that he has always been cows milk protein intolerant too and is on a prescription formula and we have not been able to have dairy. Which makes food very limited for this very fusy child.

I also do think that the Losec takes a while to work, but I would definitely get it in a suspension, that is the only way too go. Lachlan was on Losec at 3 weeks of age and I still didn't feel like I bonded with him until he was 3 mths. But I do believe there was a bout of colic happening there also which made the screaming horrendous. So that could be possible with your little one too. I do think most babies suffer with a little bit of wind up until 3 months of age. Lachlan had terrible trouble with bringing up his wind and when he did he would vomit. An ultrasound showed all the wind in his tummy.

We use to put Lachlan in a tri pillow in between us in bed, it kept him elevated and helped with his night sleeping. But day sleeping was shocking and still is!!!

I have a kid that hates to eat and sleep. Grr...... But I love him all the same.

I know how you are feeling, but I just wanted to assure you that it does get better. I am just lucky that Lachlan is such a happy kid considering, because the anger he showed as a bub (he use to kick and punch me), really scared me that, that was his nature. No doctor can say that is behavioural at that age, I was worried too, but no no no way....

GL and if I can offer anymore help, please let me know!