adenomyosis - anyone have this condition?

[runnermum]

t hanks susan - very much appreciated. Great that you love the Gold Coast, I am sure we will too! I have heard that adenomyosis can be detected with MIRs now.

Best of luck to you too - I just got my period this morning.......I have 3 more frosties left from this first IVF cycle.

[sjs]

Runnermum Im so sorry to hear you got your period, try to think of it as a fresh new cycle and opportunity Ive rung up my 'team' this morning and they are enthusiastically going to find just the right person for you, one that specialises in IVF support They will let me know later on today.

Do something just for YOU today

Speak to you soon...

[sjs]

OK, here are the details (he knew straight away who to refer you to )

Linda Moroney
976 High Street
Armadale

Ph: 95093957

Good luck Runnermum!

[gish_au]

Hi everyone, Im a little behind the 8 ball, sorry.
Just new to this site. I am a 25 year old mother of 2 girls. About 12 months ago - i was diagnosed with this stupid condition called adenomyosis. Let me just say, it is a horrible condition and what makes it even more horrible is the lack of information about this condition. You can go and look on the net - but you wont find much.

Anyway, straight after my second daughter I thought it would be nice to get pregnant as soon as possible with number 3.

But then I started getting really unbearable pain "down there", went to the Doctors and thats when I found out I have adenomyosis.

Anyway, I almost came to the conclusion that I might not be able to get pregnant again. Until today. I have just received news that I am pregnant and was fortunate enought to conceive naturally, so yes it is possible to fall pregnant with this condition. I am yet to find out just what risks I may face with this pregnancy as my own GP does not know much about adenomyosis, so i am being referred to a hospital and obs specialist.

So, my heart goes out to you - I can understand the emotional pain you are going through - but it can happen! I hope one day you will provide everyone with good news.

Kath

[Jaide]

Hi Kath,
I just found the site and am happy to read of your pregnancy. I am ttc aswell with this horrid disease and have just been told i have an immature follicle,(music to my ears). If i can ask did you find out about the risks involved? And is all going well?
Good Luck
Lisa.

[gish_au]

Hi Jaide,

The pregnancy is going well. I am now 8 weeks pregnant and had my first ultrasound last week. Everything is looking well and is where it is meant to be.

When the hospital first told me I had adenomyosis, they advised me that if I got pregnant it would help ease the pain from this condition and it definately has. It has taken me 21months to fall pregnant (used to fall at the drop of a hat) and I was getting worried I would not fall pregnant. When I found out that I was pregnant it was scary because everything I could find on the internet about adenomyosis and pregnancy seemed really "dooming". So I just kept bugging the Midwives at the hospital until I finally spoke to a doctor. He said that trying to get pregnant is the hardest part but once pregnant, there are no more risks involved than in a normal pregnancy. I was only 24 when i got told I had this condition (25 now). They have told me that I am quite young to have this condition, and I am planning on this being the last pregnancy. But I did fall pregnant naturally and I hope that others can have the same chance that i was blessed with.

[runnermum]

I am so happy that my orginal post has at least provided a place for women like us to vent and talk and also rejoice. congrats on your pregnancy Kath and I wish it all goes well from here.

I myself try to remain positive. I am into my second stim cycle. As I may of said, although I do not experience any pain from this condition, my gyno still seems to 'think' I may have it. Reading over many of others stories, it sometimes seems unlikely, however I do get a lot of blood clots (sometimes quite large) when AF is here.....do others have this??

As each of us find out more about the condition, please post it here......it is small resource for others, but an important one, along with the wonderful emotional support.

[Amie]

I am so happy that my orginal post has at least provided a place for women like us to vent and talk and also rejoice. congrats on your pregnancy Kath and I wish it all goes well from here.

I myself try to remain positive. I am into my second stim cycle. As I may of said, although I do not experience any pain from this condition, my gyno still seems to 'think' I may have it. Reading over many of others stories, it sometimes seems unlikely, however I do get a lot of blood clots (sometimes quite large) when AF is here.....do others have this??

As each of us find out more about the condition, please post it here......it is small resource for others, but an important one, along with the wonderful emotional support.

Hi runnermum, did you end up finding/having success with acupuncture in Melb?

[Jaide]

HI Kath,
I've been hanging to get a reply... Congratulations, i'm so happy to hear a good news story, I'm so excited for you. It's good to know it can be done. Since my U/S last week showing we have a follicle we've tried every night, my temp has spiked and then panned out and spiked again today by .3 degrees...and hopefully will maintain at this. I'm not having a period with this condition so it's really hard to tell whats what. My next appt is on the 23rd but i dont think i can wait till then to find out. How long do you think i should wait to do a test?
Lisa.

[Jaide]

Hi All,
Would love to hear from someone, new news, events and experiences.
Whats happening in everyones cycles, how are things in general?
Lisa.

[sea74]

Hello ladies, I hope you don't mind me jumping in here. I'm about to do my first IVF cycle. I have what my doctors have called a "very impressive" adenomyosis. I've been trying to get PG for 25 cycles.

I've done 3 rounds of clomid, 3 rounds of double IUIs w/injections.
I also a small amount of endo, a blocked right tube and a luteal phase defect.

But the biggest problem is the adenomyosis.

I'm terrified about going through IVF. Also, I live in the U.S. and have ZERO infertility coverage and everything is paid out of pocke for us. I'm hoping the first time works for us.

If anyone has any advice or other success stories, I'd LOVE to hear them.

Thank you!