Im sorry to hear your struggle with your endo diagnosis! I was lucky to have a wonderful Dr who diagnosed my endo in 2002. I have had 2 laps initialy one to remove my endo and another in 2007 because my Dr thought it had come back cos I was still experiencing my pain. When I woke up and was notified there was no endo I was devistated cos I didn't know what this meant! It turns out that from where my endo was removed I still have what I understand to be nerve pain. What it means is my nerve endings from where the endo has been removed are still sending messages to my brain that the endo is still there resulting in the pain. Its like when people who have had their leg etc removed yet they still feel pain where there in no leg. Its very hard to deal with I have tried several treatments yet at this stage nothing has worked. My Dr has referred me to the pain clinic at our hospital and is looking at Zoladex as an option. What was it like? Would you recommend it?
What a terrible ordeal!
I too have endo, had a lap when i was 20 to confirm it. Thankfully I don't suffer from that severe pain that so many women do. When my Gyno told me that i had it, i had no idea what it was? I asked if i would be able to have children and he said yes, but i should try and start before i was 25? When your 20 it sounds like YEARS away, but when you hit 25 and the last thing on your mind is children - its pretty tough!! Anyway I decided that I would not try until I was completely ready - endo or no endo! So now i am 27, I have an amazing DP and we have just recently decided the time is right. What will be, will be
I'm so glad you found someone great to help you. It really makes such a difference. Wishing you all the best for the future
I was diagnosed with endometriosis at the age of 18, before my doctor diagnoised me..I diagnosed myself after reading a health journal that was floating arounf the library at mums one day.
I had terrible periods from the age of 12, to the point where I would be bed ridden for the first 2 days of each period, with severe cramping and excessive heavy and clotted bleeding...not to mention my period would last for upto 12 days of continuous heavy flow!!!
I ended up having a laparoscopy to rid the endimetriosis and recovered well and in no time my period s had greatly improved and become "normal" and I finally felt like I could live again when I had my period and carry on as though I didnt have a period at all.
I fell pregnant at 19 and had a sucessful ad healthy pregnancy and have no problems derived from the endimetriosis since. I heard from someone that pregnancy can better the chances of it returning...or at least the severity of it.
reading your story was just like looking at my story.
i was about 21 when i started having intercourse pain and just like you i have visited numerous gp's and gynaes who also told me it was nothing and just go home and have a few tablets.
over the years the pain progressed and since going off the pill in dec 06 i also have pelvic pain, period pain and ovulation pain.
what makes me angry is that i waited 10 months to see a gynae on the gold coast and i left in tears cause she belittled me and said there was nothing wrong and i should not go back to see a doctor, and mainly because i had no period pain and no pain on examination.
then i went off the pill 2 years later when i felt it was time to try for a baby, and i realised that i actually do get bad period pain.
I went to see a gynae in my new town when i was 26 and he suspects i have endo cause i have almost all of the symptoms, but sent me home to try for a baby for 12 months.
Well 13 months has passed and i'm not pregnant and we have our second appoint with him in the morning, so i am very nervous but extremely optimistic that i will finally get some news, especially since i will be 28 in a few weeks and the age thing daunts on me also. (getting close to 30 would probably not bother me if i wasn't TTC.) ha ha it's funny how things like that can make you worry about getting older..
i have a fear of hospitals and freak out at the thought of having a lap, but at the same time i worry that if i do have endo, i have had it for many years and worry if there is any damage done, so i'm hoping they will do this soon so i can get some answers oh and a baby.
good luck with everything.
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