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Thread: Another with Endo.!!!

  1. #1

    Default Another with Endo.!!!

    Well I dont know where to start. Fistly I started getting painful periods when I was 12 years old. I just assumed that it was "normal". When I was 16 nearly 17 I had the worst pain so went to the GP & he reffered me straight to the hospital. Like Astrolady, the surgeon came along & thought it was my appendix at first. Then the pain went away so they sent me home. It happened again, so back to the GP!!! He referred me to a private Gyn/Ob who put me in for a laparoscopy. Into to hospital I go, having to sign the consent forms, to give them permission to do whatever they find while under. Very distressing at nearly 17years old. I remember waking & get the diagnosis that they 'never found anything'.

    So ok, it settled down for a while, with me just taking some Naprogesics until around July 2002. Went to the GP, she sent me for an U/S which showed a dark 3cm growth on my left ovary. Then sent a referral to the Base Hospital for me to see a Gyn/Ob there. By time all this came around it was October 2002. Finally my appt. came around so up to the Hospital I go. I was very disappointed in the Gyn/Ob there!! She did an internal, didn't even pull the U/S out of the envelope, only the findings then said, " You have like endometriosis, but not endometriosis as such! And as for the cysts. Cysts come & go all the time in your cycle!!!" So I was waiting 3 months for a 15 min appt with her, for her to tell me that if I had pain, to go & get some Naprogesics. Very disappointing!!!!

    So I kept on going along for the Nov & Dec. It was January & I was at work. I went to lunch, fine feeling great, then came back from lunch with instant pelvic pain, just like someone switch it on!!! I felt like my pelvis was hanging to my knees!!! I felt like I was going to vomit, I was getting the sweats, & was pale. I went home and the pain was excruciating!! I called my B/F to come home from work in his lunch time to take me to the GP. During that time waiting for him, I couldn't sit down or lay down as it hurt to much. I had to stand with my hands resting on my knees. I was so hot & felt like I was going to pass out so went & got into a cold shower until he got there.

    Went to another GP who asked what the Gyn/Ob at hospital had said. I told him & he said Naprogesics aren't strong enough. So he gave me Indocid anti-inflammetries & Panadeine Forte. That settled the pain down alot. Then he said, as soon as I feel a twinge of pain take an anti-inflammetrie. That is fine saying that, but when Feburary came along because my cycle can go from 26 - 33days I couldnt pin point when, so when I felt a twinge of pain one morning at work, I left work and went home to take one of the tablets. I live about 5 mins from work then, but by the time I had got home I could hardly walk up the stairs, and so it went all over again. Back to the GP who referred me to a private Gyn/Ob. I guess the most frustrating thing with it all, is I felt like no-one was willing to "help me". I am sure all of the other people with endo can relate to that.

    So off to Dr Waterfield, Gyn/Ob I go. He is in Cairns. I would highly recommend him!!! The visit went well, with him doing an U/S in his rooms & said that I had a 3cm "chocolate cyst" on my left ovary, which was probably caused by endometriosis but the only way to know would be to do a Lap.So I went Private/Public but he only operates at the Base every 2nd Thursday so he had just had his day, the next fortnight was booked up with Laps and C's, so it would be the following fortnight.



    The day came along really fast which was a relief. I went in at 8am & was back out at 9.30am. I never saw the Gyn/Ob again as he was busy but had a follow up cons. in his rooms on the Tuesday to get the stitches out. I was so saw, and started vomiting from the Pethadine. Yuk, with stitches in and all. I guess that was the worst thing of the whole lot that, and the pain when moving!!! I said to B/F that with the last Lap, I wasnt nearly as this sore!!!

    I go back for my visit on the Tuesday to see what the diagnosis was. He said when he got in there with the Laproscope, the cyst was 10 cm and was just starting to adhere to my bowel!! When he went to grab it with the forceps, it ruptured!!! So I guess I am a very lucky girl as I was only in day surgery, and know of another girl, which that happened to and she ended up in hospital for 2 weeks with septicemia. Also he said that I did have endometriosid. I guess it was invetible though as my mum has it, she has 3 sisters, they have it & my Nan also has it. So I guess it runs in the family!!! He said he had cleaned up the endo as much as he could but there was still some surface endo there, so he upt me on a 6 month treatment of Zoladex to give it a chance to clear up. I had my last shot on August, have had 3 periods since then & now am starting to get pain again!!!!!! So I am going back to the Gyn/Ob at the end of Feb. I am just hoping that it isnt another cyst, but this time on my right ovary!!! I am thinking positive & having faith. He said that if I wanted to have children that I should be at least pregnant in 3 years as he doesnt like my chance after that, and at 30 a womans fertility rate starting dropping anyway. Yes I do want to have children, or at least one child. He said, that if I had had my children that they would have done a hysterectomy when I was under & that it was only that I had not had children that they didnt. I was so happy to have finally found someone who wanted to help & 'fix' me, that I could have given him a big KISS!!!! =D>

    So I am sorry if this is soooooo long, but this is my story & it would be great to hear from other people who can relate to this. It is so good to read other peoples stories on this forum, as I think alot of people dont understand as they can't relate to it.

    Take Care for now
    KT250

  2. #2

    Default

    Hi kt250

    You have probably read my story from the boards anyway but you can read the whole version at [url]www.theastroweb.com/endo/[/url]

    Sounds like we have very similar stories but yours has unfortunately dragged on for much longer. I am lucky to have found a GP that would listen nearly straight away.

    Love :smt049

  3. #3

    Default Thanks

    Hi Astrolady,

    I went to your page from another post last night before I joined & read your webpage. Its great. I wish you all the very best of luck, & great wishes with your new little addition.

    Thank you for replying so promptly. It is just so great to have people to talk to.

    Take Care
    Love Kt250 O

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