Hi Simone

I feel your pain, I don't have endo - I have PCOS but am also an IC sufferer, and have been for about 15 years. After years of referrals to Urologists (a lot don't believe it exists) I was finally referred by a good GP to Helen O'Connell (in Melbourne) who specialises in IC.

I ended up having bladder surgery whereby she basically cleaned out my bladder and used an antiseptic wash to clear everything out and to help my bladder lining heal. I still had to go through IVF to have my babies, but since having that done 7yrs ago the amount of UTI's and discomfort I have has decreased dramatically and any UTI's I now get can be managed with antibiotics.

Where are you based??? I would recommend trying to see a specialist who knows and acknowledges IC to get help