Endo updates..... how are you travelling?

[YDI]

Diagnosed: September 2006

Symptomatic since: Pain started 1999, was referred for painful periods put on the pill experienced minimal relief. Pains worsened as years went on and became more GI. Could not eat without pain, painful bowel movements, blood in stool in and out of ER for morpheine pain relief for severe stomach pain usually occuring after eating. Gas pains and bloating and period pain normally starting 2-3 days before period and had me doubled ove rthe entire time, alternating diarrohea and constiapation and fatigue.

Surgeries: 3 gatroscopies, 1 colonoscopy, 1 diagnostic lap & hysteroscopy September 06, Bowel resection (laparotomy) May 29th 07 and excision

Areas of endo found: small and large bowel, 40cm of small bowel removed, pouch of douglas, ovaries, tubes, bladder and appendix.

Fertility: No guarantess but Fingers crossed!!!

Treatments: Been on bc pill, currently on Synarel (GnRH)

Medical help: Been diagnosed by doctors for celiacs, lactose intolerance, ulcers, IBS appendicitis and in fact I had none of the above Go Figure!!! Damn doctors. Was in the ER 6 times in 6months for debilitating pain had to be carried in and put on morphiene, sent home being told i had gastroenteritits on all occasions. Finally Referred myself to a gynae who did my diagnostic lap in sept 06 which got the ball rolling.

Outlook now: am minus some bowel but my surgeons have said that my endo was so extensive and in the top 10 of the most complicated bowel surgeries they have performed. (at least they earned their money!) I am currently disease free Yay!!

[dusty]

YDI
You have had a really rough ride on the endo wave Glad to hear you are endo free.

Your's and Nic's story really show the medical profession need to take our concerns seriously and investigate whether endo is a problem, not just so we can get pregnant but also for our ongoing health and happiness.

Here is to a BFP for you soon and a pain free future

dusty

[Laranna]

YDI – when I was 18, I was in hospital 3 times in the one year with excruciating pain (so bad I passed out each time). Every time I went into hospital the doctors told me I had a “grumbling appendix” and sent me home. No one ever mentioned endo to me back then. In hindsight, if the doctors decided to take my appendix out back then, they might have discovered endo much earlier…

[cassiopeia]

Diagnosed: September 2006

Symptomatic since: Pain started 1999, was referred for painful periods put on the pill experienced minimal relief. Pains worsened as years went on and became more GI. Could not eat without pain, painful bowel movements, blood in stool in and out of ER for morpheine pain relief for severe stomach pain usually occuring after eating. Gas pains and bloating and period pain normally starting 2-3 days before period and had me doubled ove rthe entire time, alternating diarrohea and constiapation and fatigue.

Surgeries: 3 gatroscopies, 1 colonoscopy, 1 diagnostic lap & hysteroscopy September 06, Bowel resection (laparotomy) May 29th 07 and excision

Areas of endo found: small and large bowel, 40cm of small bowel removed, pouch of douglas, ovaries, tubes, bladder and appendix.

Fertility: No guarantess but Fingers crossed!!!

Treatments: Been on bc pill, currently on Synarel (GnRH)

Medical help: Been diagnosed by doctors for celiacs, lactose intolerance, ulcers, IBS appendicitis and in fact I had none of the above Go Figure!!! Damn doctors. Was in the ER 6 times in 6months for debilitating pain had to be carried in and put on morphiene, sent home being told i had gastroenteritits on all occasions. Finally Referred myself to a gynae who did my diagnostic lap in sept 06 which got the ball rolling.

Outlook now: am minus some bowel but my surgeons have said that my endo was so extensive and in the top 10 of the most complicated bowel surgeries they have performed. (at least they earned their money!) I am currently disease free Yay!!

I can't believe it!
Everything you are explaining about the pain, the other diagnosis' is what I have been experiencing, I never thought it would also be related to Endo. I have been tested for ulcers, diagnosed with gastro, self diagnosed myself with lactose intolerance... and have almost constant nausea.
I have only been on here a day but I am learning so much from everyone.
But I haven't introduced my self... I am Cassie am 21 was diagnosed with Endo 1.5 years ago. Had a Laparoscopy & Hysterscopy the Endo was found where my appendix had been removed 10 years ago and under my uterus. Am now being treated with the pill having 3 monthly AF, but my "treatment" is causing more problems as now its causing my cervical cells to grow abnormally, so its back to the gyno on 31st Jan to have a colposcopy. Has anyone had a colposcopy? I have no idea what to expect?

[Mumszword]

Hi Chris

Just saw your message - sorry I have been a bit slack with checking my emails and the forum of late with christmas, new year etc....

I wish you all the very best with your op. I hope its sucessful and pain free and they are able to help with your symptoms... I will be thinking of you - let us know how it all goes.....

I am doing fairly well.... I have a few odd symptoms.... my bladder was involved with the endo and since they removed the endo I have some bladder related pain .... so I think I may have to follow this up?? I have had the occasional abdominal sharp pain but nothing that I can say that definately feels like endo IYKWIM? I am hoping they have got it all with surgery.... but as far as I know the only way they can check if it is re-occuring is to do surgery again? so I think I will play it by ear....

Well I hope everyone else is well and life is treating them good. Keep us posted on how you all are.....

take care and best wishes.....

Mumszword.

[beau_9]

hello again,
Good to hear your doing well after surgery mumszword. just thought i'd give an update too.
I have another appoint with the gynae next month, and i have all fingers crossed i'll get somewhere this time round. I'ts been 13 months of ttc now so i'm hoping this will be a reason for them exploring what it could be (even though endo is suspected) cause i'm sore and getting depressed about all the pain all the time. Not to mention i can't bed that often due to the pain, so that might be a problem conceiving in itself (lol).
My only worry is my gp told me this gynae may want to refer me to another specialist in brisy cause no one where i live is qualified to remove endo, and i'm worried i'll be waiting even longer, but i'm being optomistic and well i guess i'll just have to wait and see..
Ok take care,
bo