Dear Mumzword,
I know exactly how you feel, I found (what I think is) the best place in Sydney..Endo-Gynaecology at RHW, Randwick. Unfortunately there is not enough funding from the govt therefore if you are a public patient the waiting list is approx 12 months. After a few disasters from doctors in my area I decided that it was worth the wait. I had to have a hysterectomy; after waiting all that time I did the same things, the bowel prep was a pain in the neck but I didn't care...surgery at last! I too was bumped that day and I reacted the same way as you did... I burst into tears when the professor took the time to come and break the news to me personally. I think it's a pretty normal response so don't feel bad darling; the next time they put me on the top of the list and all went ahead and I am pain free. I wish you all the luck in the world.
Dear Kathryn,
I never thought to check it out at the time but the only symptoms I had were very painful periods when I was young; about a month or two after getting the Provera injection for contraception was when I experienced all the other endo symptoms. I can't help wondering if it was the injection that unmasked my symptoms. I ended up finding out that I had severe endo, cysts, polyps and adenomyosis. I still don't know what part the injection played but you may want to do some research before you try. My gyno put me onto the Provera tablets to stop my menses saying he preferred them rather than the injection but I didn't ask why. Good luck, I hope you stay healthy and never have to put up with the symptoms again.
Linda
Thanks for sharing your story Linda, it was appreciated and its nice to know that I was not the first to react like this.... I just feel so bad for making the surgeon feel bad on the day.... not that I said anything nasty or anything but his secretary said he was upset to see how it had upset me and made me cry..... I feel like a real goose but its all the anticipation and build up of waiting and preping that does it too you..... did not help either that I wrote my will in the waiting room on the day which only heightened the stress and anticipation..... I know a silly thing to do and leave to the last moment... but I have never been able to bring myself to writing one before but when your faced with major surgery.... push comes to shove....

Thanks again for sharing it has brightened my day.....

Everyone else thanks for sharing your journeys too.... I know I really appreciate and enjoy hearing how you are all travelling.... its nice to hear about your small wins over the disease and what treatments your undertaking. Its an inspiration to talk to you all and it always helps to share the journey with someone who has walked a mile in your shoes.... Unless you have suffered from endo its really hard (this is from my experience) for people to understand what it means to cope with endo and its impact on your life.

Thanks for sharing all...... I hope you all continue to update on how your travelling as it is not only good to share a burden but you are also helping new endo suffers understand what to expect with treatments and what options are open to them and what symptoms are associated with the disease......

Wishing you all a wonderful week........

Remember "Faith is the substance of all things hoped for and things not seen....."