thread: I recently found out i have PCOS..

Hybrid View

Previous Post Previous Post   Next Post Next Post
  1. #1

    Jul 2009
    Australia
    5,102

    Oh, i hope that doesn't happen to me! i havent been on the pill before i was always too scared too but since i have PCOS i have to go on it to manage it. I'm pretty sure my partner would leave me LOL i have been absolutely awful to be around, the littlest thing makes me go on a huge rant.

    I haven't started the pill yet i have to wait until the 8th thats when im due, thats if i get it if not my doctor wants me to take it then anyway.

    I forgot to mention that a 18 months ago i had a ruptured cyst as well as appendicitis. While taking my appendix out they cleaned up the area. I was supposed to be all healed after 6 weeks but i still had rotten pains. I went to my doctor and they did an ultrasound to see what was wrong they thought maybe another cyst had burst but it wasn't my ovaries were healthy nothing on them but i had fluid in my pouch of douglas (that made no sense to me but stopped me worrying) so when they did an ultrasound last week i was surprised to see so many cysts had formed in 18 months.. its actually scary. The lady who did it did my first and she was shocked.

  2. #2
    Registered User

    Feb 2008
    Country Victoria
    5,945

    may i ask why are u on the pill if you are trying to fall pregnant?

    yeah seeing them cysts on the screen is scary, my last scan i had for them (before Mia) i had 18 on one side and 12 on the other.

  3. #3

    Jul 2009
    Australia
    5,102

    I'm not wanting to fall pregnant just yet.. my doctor wants to wait until my insulin levels are down, or back to normal. And he also wants my cycles to be normal. So this time next year i want to be pregnant, so when im healthy and have lost atleast 10kgs.

  4. #4
    Registered User

    May 2008
    Fraser Coast, Qld
    336

    I was diagnosed in 2004 with PCOS we were ttc our first child. It was soooo hard for me to come to terms with. My other half was ready to go, and I was still coming to terms with the diagnosis. In the end I went on clomid to conceive both our daughters. With Gemma we fell preggers 2nd cycle on clomid, Jasmine was first cycle.

    And yep I have all the classic traits of it, including weight, especially around my middle. BUT I have in the last 4 weeks lost approx 8kg! Its hard work, but it is acheiveable!

    Oh and the most telling signs that I had it when I was officially diagnosed was the blood test results and ultrasound. I was riddled with cysts and my hormone levels were horrible. I have elevated testosterone and really really low progetorone levels. And my period is non existent and I don't ovulate.

    I wish you all the luck in the world hun......................I hope you have a bub of your own to hold soon...........xxx

  5. #5

    Jul 2009
    Australia
    5,102

    *twinkle* thanks for your reply. My partner really wants kids but he had left it up to me to decide when to start having babies.

    We have been together 5 years so its not as if we are jumping into the deep end (although some of my friends think we are) it upsets me that the only thing stopping us is me and this condition.

    My mum had trouble conceiving so i knew that i could also have problems but i didnt think i would have PCOS. I'm trying not to let myself get down about it but its not something you easily come to terms with, im happy now that i know why i have so much weight on me.

    When i got the blood tests done they did a hormone test and they were normal which i find odd because i am so all over the place.

    And thank you so much your really sweet i hope i have a bub soon too. And congrats on your 2 girls!

  6. #6
    Registered User

    Feb 2008
    Melbourne
    1,021

    Hi Jacinta,

    Great to see you have got heaps more information from people. My symptoms were secondary amanorah (sp?) - which is loss of periods. My cycles are so irregular it is impossible to predict when I will have a period - often it is 6 months or longer between cycles. I had an ultrasound done when I was finally diagnosed and I had 30 cysts on the right ovary and 30 on the left! So heaps of cysts! I also had a problem with my levels of FSH and LH - both hormones that help with the formation and release of an egg. Apparently the levels were the wrong way around if that makes sense - the one that was meant to be higher was lower. I also had some bone loss due to all of the years of no periods - that is also part of the reason that doctors put you on the pill if you are not currently trying to get pregnant - regular periods help slow down bone loss. In regards to weight gain, acne, insulin resitance and hair growth - I had none of those symptoms. So as you can see we all have the same syndrome, but with so many different symptoms.

    GL with your journey.

    Janie xxx

  7. #7
    Registered User

    Dec 2006
    In the Angelic Realm
    1,675

    Hey Jacinta,

    I'm another with PCOS. I was not diagnosed til i was 29yo. I always had irregular periods ranging from 45-50 days. I fell pregnant to DS within 6 months of TTC, i was about 65kgs. We had a hard time falling pregnant with DD, when i had all sorts of tests done, which showed a 6cm cyst on my ovary and a few smaller ones on the other. I was 80kgs. I went and saw an endocrinologist (hormone specialist), who told me that my current weight of 80kgs may be too much for my body to handle and that i had to lose some weight. I lost 10kgs before i saw him next and had to cancel my appt because i had fallen pregnant.
    I now maintain my body to below 70kgs as i know that my body can't handle it.

    I find weightloss hard and my weight sticks IYKWIM. I have a hairy upper lip, slightly hairy belly etc.. which i need to pluck (only my upper lip) regularly. I had severe acne as a teenager and used Roaccutane to cease it. Add i crave sugar all the time. And i have thrush all the time. My hormones are just out of whack.

    So, just to give you some hope... I fell pregnant naturally twice. Give weightloss a try. It worked for me and it may work for you.

    GL

  8. #8

    Jul 2009
    Australia
    5,102

    Hi Janie.

    Yes the ladies on here are wonderful, I am so relieved to hear that I am not the only one and hearing everyone else's symptoms and what they have to go through puts it all in a different perspective and it really is different for everybody. I definitely have loss of periods. I would too go months without one but when i did get one they would be so horrible, the PMS was double so instead of nausea i would throw up, the cramping were so bad i couldn't move, i would get headaches and really tired oh my boobs would get so heavy and so sensitive but thankfully i only felt like that a few times a year. What does bone loss mean? Does that mean your more prone to have a broken bone? I haven't heard of that one.

  9. #9
    Registered User

    Jul 2009
    Shepparton Victora
    10

    Hey Jacinta.

    I am so sorry to hear what you're going through! Sometimes having a good cry will help you to feel better.
    It's hard when the people you want to understand, just dont. And especially when they dont appreciate what you're going through.
    I was reading some of the other posts here, and my sister was taking the pill just for contraception, and it made her crazy! have you ever taken the pill before? I know sarah was really angry and crying alot, as well as just suddenly losing it.
    Are you seeing a doctor again soon? I have been looking into possibly trying some alternative therapys.. was leaning toward acupuncture mainly. Maybe there is something out there that might help you?? Ill keep my eyes out for any possibilities while im looking and pass them on if i find anything!
    A big hug all the way to you!

    Katrina.

  10. #10
    Registered User

    Jun 2009
    NSW
    5

    Hi.

    I was diagnosed with PCOS in 2004 after 16 mths of trying to get pg. I must admit it was a HUGE shock!! I had always had irregular cycles since I started my periods at age 15. I thought this was "normal" and thought nothing of it untill i admitted to my MIL that we were ttc and that I thought it would take a while due to irregular cycles and picking the right day. It was her reaction to this that made me think this was not normal. My initial blood tests all came back normal. I am not over weight (if anything I'm on the lighter side 52-54kg). I have always and still do have a prob with acne more on my neck and lower face, and my 1st ultrasound abdo was apparently normal.

    It was only when the fertility specialist did a vaginal U/S that the cysts were apparent. We had treatment with IUI (with clomid) and concieved our daughter on the 1st go! So its not all doom and gloom.

    I also heard that being on the pill can help by stopping more cysts from forming. So after I had my daughter, I went on it (as we didn't want to have a surprize at the time), and I tried 3 different types of the pill and none of them i was able to tolerate. So I gave up in Aug 2007. I found myself feeling very hormonal while on the pill, and one of them had me with AF for 2 wks then a 2 wk reprieve, then AF 2 wks... and so on. Then another left me with no AF at all and bloating which I didn't like either! So all the best with the pill, I hope you can tolerate it.

    Also, just a word of encouragement, my cousin was also diagnosed with PCOS, and after 2 yrs of trying naturally, she concieved. She found out she was pg on her honeymoon so it was a lovely surprize for her. I also have met a few people who have had PCOS and had help to get pg with #1 and then have no probs getting pg with subsequent children.

    All the best with that future family

    Jellybean18.