I'm not wanting to fall pregnant just yet.. my doctor wants to wait until my insulin levels are down, or back to normal. And he also wants my cycles to be normal. So this time next year i want to be pregnant, so when im healthy and have lost atleast 10kgs.
I was diagnosed in 2004 with PCOS we were ttc our first child. It was soooo hard for me to come to terms with. My other half was ready to go, and I was still coming to terms with the diagnosis. In the end I went on clomid to conceive both our daughters. With Gemma we fell preggers 2nd cycle on clomid, Jasmine was first cycle.
And yep I have all the classic traits of it, including weight, especially around my middle. BUT I have in the last 4 weeks lost approx 8kg! Its hard work, but it is acheiveable!
Oh and the most telling signs that I had it when I was officially diagnosed was the blood test results and ultrasound. I was riddled with cysts and my hormone levels were horrible. I have elevated testosterone and really really low progetorone levels. And my period is non existent and I don't ovulate.
I wish you all the luck in the world hun......................I hope you have a bub of your own to hold soon...........xxx
*twinkle* thanks for your reply. My partner really wants kids but he had left it up to me to decide when to start having babies.
We have been together 5 years so its not as if we are jumping into the deep end (although some of my friends think we are) it upsets me that the only thing stopping us is me and this condition.
My mum had trouble conceiving so i knew that i could also have problems but i didnt think i would have PCOS. I'm trying not to let myself get down about it but its not something you easily come to terms with, im happy now that i know why i have so much weight on me.
When i got the blood tests done they did a hormone test and they were normal which i find odd because i am so all over the place.
And thank you so much your really sweet i hope i have a bub soon too. And congrats on your 2 girls!
Great to see you have got heaps more information from people. My symptoms were secondary amanorah (sp?) - which is loss of periods. My cycles are so irregular it is impossible to predict when I will have a period - often it is 6 months or longer between cycles. I had an ultrasound done when I was finally diagnosed and I had 30 cysts on the right ovary and 30 on the left! So heaps of cysts! I also had a problem with my levels of FSH and LH - both hormones that help with the formation and release of an egg. Apparently the levels were the wrong way around if that makes sense - the one that was meant to be higher was lower. I also had some bone loss due to all of the years of no periods - that is also part of the reason that doctors put you on the pill if you are not currently trying to get pregnant - regular periods help slow down bone loss. In regards to weight gain, acne, insulin resitance and hair growth - I had none of those symptoms. So as you can see we all have the same syndrome, but with so many different symptoms.
I'm another with PCOS. I was not diagnosed til i was 29yo. I always had irregular periods ranging from 45-50 days. I fell pregnant to DS within 6 months of TTC, i was about 65kgs. We had a hard time falling pregnant with DD, when i had all sorts of tests done, which showed a 6cm cyst on my ovary and a few smaller ones on the other. I was 80kgs. I went and saw an endocrinologist (hormone specialist), who told me that my current weight of 80kgs may be too much for my body to handle and that i had to lose some weight. I lost 10kgs before i saw him next and had to cancel my appt because i had fallen pregnant.
I now maintain my body to below 70kgs as i know that my body can't handle it.
I find weightloss hard and my weight sticks IYKWIM. I have a hairy upper lip, slightly hairy belly etc.. which i need to pluck (only my upper lip) regularly. I had severe acne as a teenager and used Roaccutane to cease it. Add i crave sugar all the time. And i have thrush all the time. My hormones are just out of whack.
So, just to give you some hope... I fell pregnant naturally twice. Give weightloss a try. It worked for me and it may work for you.
Sorry i didn't see your post until after i replied to Janie.
I've been told that my weight will affect my chances of falling pregnant. I dont have much extra hair, only on my top lip (only noticeable if you get close to my face, my partner laughs at me all the time...) and my belly. I am very moody though, i fly off the handle for no reason most the time and i am over emotional. I don't have acne which is surprising my mother had it terribly as a teenager and my father had it as an adult (my mother told me, i actually don't know him) Iv had a lot more breakouts lately than i usually have but nothing extreme.
I had bit of breakdown last night, my partners sister had a baby recently and because we arent speaking im not allowed to see him, he was born 5 weeks early so hes still in hospital.
My partner took photos of him and really wanted to show me, he was like a child getting all excited and i was mucking around and said your a proud uncle arent ya and he said well yeah and i said you will be a proud father one day wont you and then out of no where he started yelling saying that we cant have a baby now we cant afford it because im not working. I started crying. I said to him of course we can't right now, have you forgotten what i have. i said even if i wanted to get pregnant my body wont allow it.
I had been trying to keep it together i hadnt cried in days and by him saying that i just couldnt stop i cried for about 2 hours. When i finally calmed down he showed me the photos and i started crying again i want kids so badly.
Yes the ladies on here are wonderful, I am so relieved to hear that I am not the only one and hearing everyone else's symptoms and what they have to go through puts it all in a different perspective and it really is different for everybody. I definitely have loss of periods. I would too go months without one but when i did get one they would be so horrible, the PMS was double so instead of nausea i would throw up, the cramping were so bad i couldn't move, i would get headaches and really tired oh my boobs would get so heavy and so sensitive but thankfully i only felt like that a few times a year. What does bone loss mean? Does that mean your more prone to have a broken bone? I haven't heard of that one.
I am so sorry to hear what you're going through! Sometimes having a good cry will help you to feel better.
It's hard when the people you want to understand, just dont. And especially when they dont appreciate what you're going through.
I was reading some of the other posts here, and my sister was taking the pill just for contraception, and it made her crazy! have you ever taken the pill before? I know sarah was really angry and crying alot, as well as just suddenly losing it.
Are you seeing a doctor again soon? I have been looking into possibly trying some alternative therapys.. was leaning toward acupuncture mainly. Maybe there is something out there that might help you?? Ill keep my eyes out for any possibilities while im looking and pass them on if i find anything!
A big hug all the way to you!
No i haven't been on the pill before, I've always been a bit hesitant to go on it because of the side effects. I'm going on it to try and regulate my cycle. What pill is your sister on?
I will be talking to my doctor this week.. i just spent a good 20 minutes throwing my guts up i took the metformin like im supposed to with my dinner a few hours ago and its been giving me stomach aches but nothing like i just had. I just looked up side effects and they said that the symptoms are short lived so maybe i will feel like this for the first couple of weeks and it will die down.. i hope so
I was diagnosed with PCOS in 2004 after 16 mths of trying to get pg. I must admit it was a HUGE shock!! I had always had irregular cycles since I started my periods at age 15. I thought this was "normal" and thought nothing of it untill i admitted to my MIL that we were ttc and that I thought it would take a while due to irregular cycles and picking the right day. It was her reaction to this that made me think this was not normal. My initial blood tests all came back normal. I am not over weight (if anything I'm on the lighter side 52-54kg). I have always and still do have a prob with acne more on my neck and lower face, and my 1st ultrasound abdo was apparently normal.
It was only when the fertility specialist did a vaginal U/S that the cysts were apparent. We had treatment with IUI (with clomid) and concieved our daughter on the 1st go! So its not all doom and gloom.
I also heard that being on the pill can help by stopping more cysts from forming. So after I had my daughter, I went on it (as we didn't want to have a surprize at the time), and I tried 3 different types of the pill and none of them i was able to tolerate. So I gave up in Aug 2007. I found myself feeling very hormonal while on the pill, and one of them had me with AF for 2 wks then a 2 wk reprieve, then AF 2 wks... and so on. Then another left me with no AF at all and bloating which I didn't like either! So all the best with the pill, I hope you can tolerate it.
Also, just a word of encouragement, my cousin was also diagnosed with PCOS, and after 2 yrs of trying naturally, she concieved. She found out she was pg on her honeymoon so it was a lovely surprize for her. I also have met a few people who have had PCOS and had help to get pg with #1 and then have no probs getting pg with subsequent children.
Sorry i didn't see your reply when i replied to the last comment!
Thank you so much for your story, it seems like a lot of us have had problems since day one.
I used to be on the lighter side as well but when i was 16 i just started gaining weight really fast, and i was completely shocked when the doctor i went and saw told me that it was normal. Being 16 i didnt quite know the seriousness of it all so i just brushed it off as normal.
Not many people i know (not even my mother or my MIL) about PCOS so no one offered any help instead i had a lot of horrible things said about me, my best friends father saw me at the shops one day and he went home and told her that i had gotten "fat". I was completely shattered, i couldnt understand why i gained so much weight and being told by a male, or having one call me fat made me quite depressed.
I dropped out of school because i couldn't take the rumours going around about me, a few people said i was pregnant a few said i was doing drugs and others just called me fat. I became very depressed to the point i stopped talking to people and only spoke to my boyfriend (my now fiance) i had a big falling out with my mum so i couldnt confide in her, my sisters couldnt relate to me so talking to them was hopeless. By the time i turned 17 i gained a total of 20kgs. I started talking to my mum and she said she was worried at how fast i was gaining weight but nothing ever was done about it she just told me to start exercising.
3 weeks after my 17th birthday and 2 days before new years eve i was in a horse riding accident. Messed up my right arm quite a bit (compound fracture to my right forearm, dislocated elbow and fractured wrist) So if things weren't bad enough for me i now had to live with 2 massive scars on my arm and the pain of the metal plate and screws in my arm. I got even more depressed and more withdrawn. I don't think i left the house for about a month, and when i did people would stare and i felt like a freak. Me and my boyfriend fought a lot, i would start fights for no reason, i was moody constantly.
Finally, i'm not sure what happened but i started to cope with everything. I became really good friends with my boyfriends sister and i could confide in her and she sort of understood what i was talking about. She kept telling me to see another doctor but i always put it off.
It wasn't until a week after i turned 19 that one night i had a rotten stomach ache, i put it down to food poisoning so i made myself throw up to try and make it better but it only made it worse. When the pain wasn't gone by morning i went to the hospital and after 4 hours of sitting in the waiting room the doctor thought i had appendicitis so they operated. When i woke up i was told i had appendicitis as well as a massive ruptured cyst on my right ovary. I would have thought they would have picked up on something but no they sent me home.
It wasnt until about 6 weeks ago that i knew something was really wrong. I was at work (i was a sales assistant at diana ferrari) and i got this really horrible pain in my stomach i thought it was gas (sorry if TMI) so i just brushed it off but then when i couldnt bend over or pick up a shoe box without feeling like i was going to pass out from pain, eventually my manager sent me home. I went to the doctor and that is when he asked about my medical history and he wanted me to go all the way back to when i was a teenager (i was thinking yes finally someone will help me) i told him everything and that is when he mentioned PCOS and endometerosis he ordered a blood test and an ultrasound and a month ago i was diagnosed with PCOS.
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