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thread: I recently found out i have PCOS..

  1. #19
    Registered User

    Dec 2006
    In the Angelic Realm
    1,675

    Hey Jacinta,

    I'm another with PCOS. I was not diagnosed til i was 29yo. I always had irregular periods ranging from 45-50 days. I fell pregnant to DS within 6 months of TTC, i was about 65kgs. We had a hard time falling pregnant with DD, when i had all sorts of tests done, which showed a 6cm cyst on my ovary and a few smaller ones on the other. I was 80kgs. I went and saw an endocrinologist (hormone specialist), who told me that my current weight of 80kgs may be too much for my body to handle and that i had to lose some weight. I lost 10kgs before i saw him next and had to cancel my appt because i had fallen pregnant.
    I now maintain my body to below 70kgs as i know that my body can't handle it.

    I find weightloss hard and my weight sticks IYKWIM. I have a hairy upper lip, slightly hairy belly etc.. which i need to pluck (only my upper lip) regularly. I had severe acne as a teenager and used Roaccutane to cease it. Add i crave sugar all the time. And i have thrush all the time. My hormones are just out of whack.

    So, just to give you some hope... I fell pregnant naturally twice. Give weightloss a try. It worked for me and it may work for you.

    GL

  2. #20

    Jul 2009
    Australia
    5,102

    Hi Janie.

    Yes the ladies on here are wonderful, I am so relieved to hear that I am not the only one and hearing everyone else's symptoms and what they have to go through puts it all in a different perspective and it really is different for everybody. I definitely have loss of periods. I would too go months without one but when i did get one they would be so horrible, the PMS was double so instead of nausea i would throw up, the cramping were so bad i couldn't move, i would get headaches and really tired oh my boobs would get so heavy and so sensitive but thankfully i only felt like that a few times a year. What does bone loss mean? Does that mean your more prone to have a broken bone? I haven't heard of that one.

  3. #21

    Jul 2009
    Australia
    5,102

    Hi Turkish Delight.

    Sorry i didn't see your post until after i replied to Janie.

    I've been told that my weight will affect my chances of falling pregnant. I dont have much extra hair, only on my top lip (only noticeable if you get close to my face, my partner laughs at me all the time...) and my belly. I am very moody though, i fly off the handle for no reason most the time and i am over emotional. I don't have acne which is surprising my mother had it terribly as a teenager and my father had it as an adult (my mother told me, i actually don't know him) Iv had a lot more breakouts lately than i usually have but nothing extreme.

    I had bit of breakdown last night, my partners sister had a baby recently and because we arent speaking im not allowed to see him, he was born 5 weeks early so hes still in hospital.

    My partner took photos of him and really wanted to show me, he was like a child getting all excited and i was mucking around and said your a proud uncle arent ya and he said well yeah and i said you will be a proud father one day wont you and then out of no where he started yelling saying that we cant have a baby now we cant afford it because im not working. I started crying. I said to him of course we can't right now, have you forgotten what i have. i said even if i wanted to get pregnant my body wont allow it.

    I had been trying to keep it together i hadnt cried in days and by him saying that i just couldnt stop i cried for about 2 hours. When i finally calmed down he showed me the photos and i started crying again i want kids so badly.

  4. #22
    Registered User

    Jul 2009
    Shepparton Victora
    10

    Hey Jacinta.

    I am so sorry to hear what you're going through! Sometimes having a good cry will help you to feel better.
    It's hard when the people you want to understand, just dont. And especially when they dont appreciate what you're going through.
    I was reading some of the other posts here, and my sister was taking the pill just for contraception, and it made her crazy! have you ever taken the pill before? I know sarah was really angry and crying alot, as well as just suddenly losing it.
    Are you seeing a doctor again soon? I have been looking into possibly trying some alternative therapys.. was leaning toward acupuncture mainly. Maybe there is something out there that might help you?? Ill keep my eyes out for any possibilities while im looking and pass them on if i find anything!
    A big hug all the way to you!

    Katrina.

  5. #23

    Jul 2009
    Australia
    5,102

    Hey Katrina.

    No i haven't been on the pill before, I've always been a bit hesitant to go on it because of the side effects. I'm going on it to try and regulate my cycle. What pill is your sister on?

    I will be talking to my doctor this week.. i just spent a good 20 minutes throwing my guts up i took the metformin like im supposed to with my dinner a few hours ago and its been giving me stomach aches but nothing like i just had. I just looked up side effects and they said that the symptoms are short lived so maybe i will feel like this for the first couple of weeks and it will die down.. i hope so

  6. #24
    Registered User

    Jul 2009
    Shepparton Victora
    10

    Hey Jacinta,

    Im not sure about what brand of pill it was, but i know she has been on 3 different ones. I do remember her telling me that her dr said that some people are just affected by the pill no matter the differences, and she could make a choice to take it or not.

    That said, she doesnt have pcos, or endo, and has never had any issues or problems with her periods or anything. So maybe the pros didnt outweigh the cons for her situation, but maybe it could help you to ask your dr about it, and whether a different one would help or not.

    I also take metformin, the brand is diabex but im sure its the same thing.. and in the beginning i did feel a bit unwell, and also lost my appetite!
    I still get a slight upset tummy but thats the worst of it, and i have been taking it for about 5 months.. it seems to be lessening the longer it goes on..

    Maybe some panadol will help?

    When you see the dr mention it to her and see what she says. My dr had warned me it might happen so i didnt worry too much.


    Katrina.

  7. #25

    Jul 2009
    Australia
    5,102

    I'm going to be on the Yasmin pill its used to regulate cycles and should even out my hormones so i'm not so moody and emotional. I haven't started it yet i start on wednesday, i'm due then but if i dont get it my doctor still wants me to take it.

    Yes i am on diabex. I'm only taking 1 tablet a day then im getting bloods done again and if my insulin hasnt decreased ill be taking 2 a day. The first night i had slight cramping, the last couple of nights iv had a bit of an upset stomach but tonight i had this shooting pain in my stomach i was really nauseas and then started the vomiting. I feel a bit better now. Though i don't know if its the diabex but i havent been sleeping properly.. im usually in bed by 10 but iv been staying up really late and not sleeping very long.

  8. #26
    Registered User

    Jul 2009
    Shepparton Victora
    10

    Sorry i misunderstood! i thought you'd started the yasmin already! I hope it will help settle things down for you, and hopefully your bloods will come back good.

    I have the same -- not sleeping! mine is from pain/sick feeling keeping me awake, is why i always need a nap when tilly naps! very frustrating.

  9. #27

    Jul 2009
    Australia
    5,102

    No your right darl! and thank you i hope they come back all good too! would definitely make me feel better

    Yeah that is the reason why i cant sleep i just feel reall uneasy and just cant relax because my stomach feels all tight. Though after my little episode last night i slept like a log but still feel a little weird in the stomach. I really hope that the feeling goes away.

  10. #28
    Registered User

    Jul 2009
    Shepparton Victora
    10

    Will keep my fingers crossed!!

    Have you taken anything? has it worked?

    I called the specialist today myself, and i made an appointment to see her on august 5th. Still a long way off, but at least i know i will be seeing someone definatly, hopefully it will help me to get through til then!
    Definatly sorry that i let the referring doctor talk me into going public rather than private.. maybe things could have been moving a bit faster !

    Hope you feel better xx

  11. #29

    Jul 2009
    Australia
    5,102

    Thank you!

    No i haven't taken anything, i'm feeling a bit better now after having some lunch.

    I'm going to make an appointment today for my doctor and just double check that everything that i am feeling is normal.

    I hope your appointment goes well! xx

  12. #30
    Registered User

    Sep 2008
    In a cloud of madness.
    4,053

    Hi HUn,
    Just found this thread. Hope things are going ok for you now.
    We are all here to support you through this. I won't go into all the details of my meds etc as i did that in another thread but just wanted to say GL!
    XX

  13. #31

    Jul 2009
    Australia
    5,102

    Aww thank you that is so sweet!

    I am so grateful to have met other ladies going through what I am going through, without all of your advice and your stories I wouldn't be coping. Since coming on here i feel like a huge weight has been lifted off me, i told a few friends and my family but none of them could tell me anything that made me feel better but hearing each of your stories has given me the strength and the hope to keep going on and I dont feel so sorry for myself.

    Thank you all so much!! xxxx

  14. #32
    Registered User

    Nov 2007
    Where we swim in glitter and play on rainbows
    630

    Hi hun,
    Don't give up hope, I am 24 and got diagnosed as having PCOS 6 months ago and I am now 4 months pregnant.
    PCOS doesn't mean that you can't or won't fall pregnant.
    I was going through IUI (Artificial insemination because I am gay and in a same sex relationsip) for 2 years and just after our 3rd attempt(6 mths ago) was told I had PCOS. I was 105kgs lost 5 kilograms, took my metformin for a month and started clomid (a tablet to make you ovulate) and the very next attempt fell pregnant, so yes it is possible
    Keep your chin up. its nothing major Just another one of lifes little obsticles

  15. #33

    Jul 2009
    Australia
    5,102

    Hi hun,
    Don't give up hope, I am 24 and got diagnosed as having PCOS 6 months ago and I am now 4 months pregnant.
    PCOS doesn't mean that you can't or won't fall pregnant.
    I was going through IUI (Artificial insemination because I am gay and in a same sex relationsip) for 2 years and just after our 3rd attempt(6 mths ago) was told I had PCOS. I was 105kgs lost 5 kilograms, took my metformin for a month and started clomid (a tablet to make you ovulate) and the very next attempt fell pregnant, so yes it is possible
    Keep your chin up. its nothing major Just another one of lifes little obsticles
    Hey Bee84.

    Sorry for the late reply! Thank you so much that is so sweet! <3

    I am coming to terms with it but now the metformin is making me sick so its making me all depressed again. I woke up this morning with the worst nausea i was dry heaving i had some breakfast but i still feel the same. Though i did start the pill on wednesday so it could be that the headaches are the worst i had bit of a nanna nap yesterday afternoon i just felt if i didn't lie down i was going to fall down.

    Has anyone else experienced this while on metformin?

    To make matters worse im supposed to go out tonight with my sister and my bestfriend. My sister is visiting from QLD and she goes back on tuesday.. i will feel bad if i cancel so im hoping i will feel better in a couple of hours..

  16. #34
    Registered User

    Sep 2008
    In a cloud of madness.
    4,053

    Yes. It took me about 4 - 6 weeks before i felt "normal" when i first started it. Its a massive change in your body so it might take some time. Try some ginger ale/ginger beer and/or chamomile to settle the tummy

  17. #35
    Registered User

    Jun 2009
    NSW
    5

    Hi.

    I was diagnosed with PCOS in 2004 after 16 mths of trying to get pg. I must admit it was a HUGE shock!! I had always had irregular cycles since I started my periods at age 15. I thought this was "normal" and thought nothing of it untill i admitted to my MIL that we were ttc and that I thought it would take a while due to irregular cycles and picking the right day. It was her reaction to this that made me think this was not normal. My initial blood tests all came back normal. I am not over weight (if anything I'm on the lighter side 52-54kg). I have always and still do have a prob with acne more on my neck and lower face, and my 1st ultrasound abdo was apparently normal.

    It was only when the fertility specialist did a vaginal U/S that the cysts were apparent. We had treatment with IUI (with clomid) and concieved our daughter on the 1st go! So its not all doom and gloom.

    I also heard that being on the pill can help by stopping more cysts from forming. So after I had my daughter, I went on it (as we didn't want to have a surprize at the time), and I tried 3 different types of the pill and none of them i was able to tolerate. So I gave up in Aug 2007. I found myself feeling very hormonal while on the pill, and one of them had me with AF for 2 wks then a 2 wk reprieve, then AF 2 wks... and so on. Then another left me with no AF at all and bloating which I didn't like either! So all the best with the pill, I hope you can tolerate it.

    Also, just a word of encouragement, my cousin was also diagnosed with PCOS, and after 2 yrs of trying naturally, she concieved. She found out she was pg on her honeymoon so it was a lovely surprize for her. I also have met a few people who have had PCOS and had help to get pg with #1 and then have no probs getting pg with subsequent children.

    All the best with that future family

    Jellybean18.

  18. #36

    Jul 2009
    Australia
    5,102

    Oh bugger. Well i guess atleast it will eventually go away..

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