My story.

[Ducky]

My doctor has prescribed the pill and im living on panadol, and also an insulan suppresant i believe it is. but its a long wait to see a gynacologyst. I wouldnt be surprised to have to wait another 6 months. but in the meantime its just day to day, i always seem to be struggling with it.. hard.

First of all what pill are you taking and how much panadol are you taking a day?
You should talk to your doctor about NSAID's if surgery isn't an option.
Since you're only taking over the counter pain medication, I'd suggest taking something different. You'd be better off with merysendol or nurofen plus even. As far as I'm aware panadol is only 500mg of paracetamol, I don't believe it's mostly aimed at headaches and fever.

As far as the emotional side, it gets easier in a way but for a long time I wasn't alright.
My family although they don't understand have been supportive.
My partner, Nick has been amazing through this and I don't know what I would have done without him. He makes me hot water bottles, goes to get my prescriptions and deals with my whinging and mood swings.

To give you an idea, I've had issues with my periods pretty much since I had them. I ended up getting diagnosed with pcos and endometriosis.
I didn't have much of a cycle if I was lucky, I'd have a period twice a year and when I did have them they'd last 6 weeks. I was told it was just my hormones adjusting.
I had my first surgery for diagnosis/removal on the 8th of May. My pain hasn't reduced, if anything it's gotten worse. I've made an appointment to see my gyno on the 8th of July to hopefully get another surgery organized. Medicaiton wise: Tramadol 400mg SR, Yasmin 25mg (iirc, could be 30mg) and depending on the time of the month I'll also take mersyendol and voltaron. Even with all the medication I take, I still find the pain to be awful, I get sharp shooting pains in my pelvis that can debilitate me within seconds.

I honestly hope it get's better for you, as I could not wish this suffering on my worst enemy.


ninja edit: brick o text.

[lmkk]

Im taking about 9 panadol rapids a day. i find that normal panadol doesnt make any difference, but sometimes rapids dont do anything either. But generally it does take the edge off the pain. I take 3 at a time, and usually 3 times through the day.. I am also taking the contraceptive pill, my doctor told me to take the whole month, but i have been skipping the sugar pills, becasue they make the pain worse. I am also taking one called diabex a day, which is a diabetes tablet, but i dont have diabetes, its to help with the insulan, my body is absorbing too much.

I was taking panadeine, but i found it made it worse, and looking into it, i read somewhere that codeine will inflame the pain. I have just looked into taking mersyndol but id need to get advice from a doctor, because of asthma. i know i cant take nurofen, as it flares up my asthma which i dont take anything for usually, but nurofen brings on attacks.
Im interested to see about the surgery, ill try anything that will help. But because im still waiting to see a specialist, its the in between time. Im also thinking about seeing an acupunturist, or any other alternative treatments.
Thankyou for giving me the names of those other medications, ill write them down and whenever i finally see the gyno ill take it with me and see what might work for me. You're right about the pain, i would never ever wish it on anybody. I have had a baby, but this is so much worse. it doesnt hurt as much, but its a constant pain, and there is no relief. And at the end of it theres no reward, it just sticks around!
I really hope all goes well for you, that another surgery will eliminate it for you.

[*LittleMissSummer*]

Firstly i want to say thank you for sharing your story. Secondly i think you are such a strong person, i know if i was going through the same thing i wouldnt be able to keep it together.

I found out 2 weeks ago (if that) that i have PCOS that was after years of doctors telling me exactly what they told you, my doctor at the moment told me that most GPs dont really understand much about "lady issues" so that is why its taken 4 years to be finally diagnosed with it.... i am a wreck, whenever i think about it i start to well up i fight with my partner constantly i am sick of hearing that ill be fine that we will have kids. I will always have it, its not about having children yes i so badly want to have a family but i want to be normal, i want to be able to have sex and fall pregnant, i want to have my periods every month, i dont want to have PMS so badly i have to stay in bed the entire time i have my period because the cramps are unbearable, i dont like being moody or being over emotional, he thinks i can control it but honestly i cant i fly off the handle for no reason and i feel so terrible so when im finished ranting i spend the next hour bawling my eyes out.

Congratulations on your little girl. I hate it when doctors say that you cant have children, i know of so many ladies who had that told them and they all have kids. They should say that having children may be difficult.

I am so sorry that you are having to go through what you are, i am also mad that even your doctor isnt being supportive he should be helping you not judging you how dare he call you a liar. Its always males who are the ones who judge.

I have found talking to other ladies in the same situation to be helpful. I am still really upset about it but i am determined to not let it get the better of me.

[lmkk]

Hey =)

i dont feel like i am keeping it together, feels like i am failing..But everyday i get up and try and i think thats the important thing for now. And besides, i dont know what else to do. It seems no doctors can help. Im going to see ANOTHER gp on wednesday to see if anything might help with the pain, and if that doctor cant help, im going to insist that he help me somehow.. whether he refers me on or does something experimental.. lol im gonna be as polite but firm about it as i can!
And tomorrow i plan on calling the specialist who seems to be "too busy", for myself, instead of relying on the gp who referred me. If they tell me i cant have an appointment its not gonna hurt, but if i can see her earlier.. well fingers crossed she may have some answers or suggestions.. at least some hope!!

I dont know about you, but it seems ridiculous to me that some doctors dont understand about "lady issues"!!!. I have also heard that, and it makes me pretty mad. Being a gp, they have to know about lady issues so they can do their job!!

Its a very emotional issue, and i am so sorry you have to go through it. I understand completely how it feels to go through it. Although i do have Tilly, but i remember the feeling of not knowing. you feel very helpless and i remember, and even now feel sorry for myself. Its a very easy spiral down.

My dad is the only male who knows, and now, im trying to keep it as quiet as possible. My nanna is conservative, and when i got my period at 11 she told me i was too young to get it and she didnt want to hear about it. I hardly think she's going to want to discuss this any further. When i told her and my aunty i had pcos, they told me "lose weight and you'll be right." And thats when my dad jumped in saying "and you should see her, looks like a sick dog when shes "got pains.." and does his "sick katrina" act.. and my aunty jumps in and tells everyone how you get no pain when you have pcos.. which shes never had btw...
so i didnt even mention the endo, but that made me say oh yeah..ill see ya later!... and now avoid the subject with them all together.

Do you have any support? I find the best support has been talking to other woman who've had or have these issues.. its good to know that someone knows what you're going through and doesnt think of you as whinging or get frustrated with you when you just need someone to listen.