i too like Melbo, have had severe endo. I had 3 major ops last year to clear it. I would highly recommend you start seeing a ECCA surgeon. One that is totally up to date and aware of the new techniques used to remove the endo. I can't voice this enough as the old way of removing endo via 'burning' is pointless and it just returns. However ECCA surgeons now use the 'iceberg' technique where it is cut out, not burnt reducing the risk of it returning greatly.
I had part of my bladder and 20 cm of bowel removed. Thankfully my wonderful surgeons did such a fantastic job i no longer have any pain, and have very minimal scaring. My life has done a full turn, and I will be forever grateful for their handy work!
I would recommend that you check out the ECCA website. They have a clinic in Melbourne, I used ECCA in sydney, Dr Michael Cooper, and he has had great succes with his ladies and their pregnancy outcomes 'naturally' after surgery. He recently stared on chanel 9s RPA tv show. There are a lot of ladies on the forum who have had severe endo and have fallen pregnant. Some with assisted conception, some naturally.. Wishing all the best and good luck..
Firemansgirl - I didn't know about this ECCA, but thanks to this post, I can look that up if I ever have issues again.
Rainbow - My story (will try and keep in short) - had issues most of my menstrual life also (started at the ripe at of 11 - lucky me). March 2002 had first Laproscopy & endo removed (aged 28), constant pain afterwards, just ignored it - took drugs etc to cope. Sept 2002 another operation as the pain was just getting so bad that I couldn't work/function etc. Found out that I had small amount of endo return, but very bad adhesions (scare tissue). Uterus attached to pouch of douglas and left ovary fully stuck together. They used the new spray gel that had just come in from US and burning technique as Firemansgirl has mentioned previously.
Still major pain, sort second opinion and found after many, many expensive tests I needed a 3rd laproscopy come Dec 2002. Found I was allergic to spray gel, size 50 cent piece abscese where uterus has been "unstuck" from pouch of douglas and left ovary still stuck to bowels!!
All removed again, via burning. Still had issues for another 6 months before I was admitted to hospital in June 2003, yet another laproscopy, yet more adhesions (no endo) removed, unstuck etc, and a whole lot of med's pumped into me for a couple of days to try and prevent this from re-occurring all the time.
I was told the only way to cure me was to have a baby. It took us about 3 months to conceive my first DS, now 2 and half years old. I haven't had any issues with adhesions or endo since and it took no time at all to conceive that last 2 times (lost one this time last year - unrelated condition). My DH just has to look at me now without a condom on, and I'm pregnant.
I know it's a long winded story, but I wanted you to know that even though you have bad endo and on the bowel etc, all of my 3 pregnancies have been conceived via my left ovary which was stuck to either my uterus or bowels for over 12 months straight and it still works wonders!
I feel very lucky to have my babies, even when DS is a handful. I wanted to you know that there are others out there who have been in a similar situation and gone on to have babies. But I also believe as I was 29 when I conceived DS that was in my favour.
As you are 28 - same age I was when I went down that horrible path in my life, that you have a VERY good chance of getting through this and with babies at the other end.
Look in to the different forms of surgery as Firemansgirl has suggested because the burning option leaves you with an open wound inside after they sow you up, that often sticks and causes bad scarring and hence leaves you with other issues to contend with other than the disease itself.
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