thread: PCOS Support

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  1. #1
    2014 BellyBelly RAK Recipient.

    Oct 2007
    Outer South East Melbourne :)
    4,346

    Hi ladies.

    I'm another with PCOS. I was diagnosed last June and was told that concieving a child would more than likely not happen naturally but i did

    I also have an insulin resistance (not sure how its going since being pregnant though) and i also had weight issues. I was put on Diabex XR and i lost 10kgs in 3 months, i didn't change a thing i ate what i normally ate and i didnt increase my exercise.

    I am hoping that my pcos settles down after having bub as i remember i was miserable i was constantly in pain my mood swings were awful and i just felt awful.

    For those having trouble with weight loss have your insulin levels been checked? i wondered why no matter how much i exercised i didnt lose very much if anything at all and it was because of my insulin.
    Wow 10kgs? - im i lose some kind of weight, as im also excercising, but so far i haven't noticed anything (ive only been on it for 1 month) and i refuse to get on scales - last time i did i was 92kg which was just horrific for me - Interesting you mention about pcos settling down after bubs, as mine was fine until about 5 months ago when all the symptoms just started flaring up again - i had my insulin levels checked, which came back slightly elevated but nothing to worry about. my gp decided to put me back on the diabex (i was on them before i fell pg with DD) in order to intercept any further rise in the levels. - i go back to have another lot of bloods done in 2 months as he wants the diabex to take effect before checking again..

  2. #2

    Jul 2009
    Australia
    5,102

    I got on the scales when i was diagnosed and i weighed 104kgs. I felt disgusted in myself especially when i weighed 65kgs when i was 16. My weight went up a bit before i fell pregnant so i was 97kgs. At my 6 week appt i was 92kgs and then when i was 22 weeks i was 87kgs but thats due to terrible morning sickness i couldnt eat anything and i didnt want to eat anything. But at my last antenatal appt (26 week) i was 97kgs so in a month i gained back all the weight i had lost but id say its all baby and because i have been able to eat. I'd like to stay under 100 for the whole pregnancy and i know most of it is baby so i will lose it afterwards.

    I'm hoping my insulin levels have dropped if they are a bit high i will ask to go back onto diabex, im hoping to get down to 75kgs after the baby. I noticed when i lost 10kgs my symptoms of pcos backed off, i wasnt so crampy and i seemed to have more regular AF's.

    Pcos is a terrible thing but not so bad if under control.

  3. #3
    2014 BellyBelly RAK Recipient.

    Oct 2007
    Outer South East Melbourne :)
    4,346

    I got on the scales when i was diagnosed and i weighed 104kgs. I felt disgusted in myself especially when i weighed 65kgs when i was 16. My weight went up a bit before i fell pregnant so i was 97kgs. At my 6 week appt i was 92kgs and then when i was 22 weeks i was 87kgs but thats due to terrible morning sickness i couldnt eat anything and i didnt want to eat anything. But at my last antenatal appt (26 week) i was 97kgs so in a month i gained back all the weight i had lost but id say its all baby and because i have been able to eat. I'd like to stay under 100 for the whole pregnancy and i know most of it is baby so i will lose it afterwards.

    I'm hoping my insulin levels have dropped if they are a bit high i will ask to go back onto diabex, im hoping to get down to 75kgs after the baby. I noticed when i lost 10kgs my symptoms of pcos backed off, i wasnt so crampy and i seemed to have more regular AF's.

    Pcos is a terrible thing but not so bad if under control.

    hun, you are doing awesome and you're growing a healthy bubba - i was unfortunate to develop GD at 28 weeks - it was diet controlled until 30 weeks where no matter what i ate my levels were sky rocketing so i ended up having to be put on insulin - wasn't fun, but the upside was that i actually lost weight and the week before i gave birth i weighed 98kgs. 4 weeks after birth i was down to 78kgs i had never felt so happy and healthy, but then slowly, over the last 15 months since DD's birth the weight has just crept back on and i cannot shift it and i know that is what's triggering the pcos, i was 92kg 3 months ago, so i'd hate to think what i am now

    Just a quick question for all you ladies with pcos, do any of you have "skin issues"? - i get terrible boils between my thighs (so embarrassing ) and i've read it is quite common in women with pcos?

  4. #4
    Registered User

    Jan 2009
    In my own little fantasy world
    2,946

    I get blind pimples over most of my upper body. Face, neck, chest (even boobs), upper arms to my elbows and all the way down my back sometimes even on my bum. They are very painful to the point they are distracting and I pick at them until I bleed. I hate it. The pill I take stops that but of course I can't take it when TTC. ATM the combination of diet & metformin (diabex XR) is what is keeping them under control but sometimes on will slip it's ugly head through.

    I'm not overweight but I really struggle to keep my weight down. I eat almost nothing but still put weight on. I'm trying to lose about 5kgs to get back to my pre-pregnancy weight. I had lost 2.5 kg (it took 2 months) but we went away for a couple of nights (yes just 2 nights) and I put on 1.5 kgs Back to the hard slog again.

    Negrita, I can't imagine how much harder it is for you, having endo on top of PCOS. PCOS on it's own is bad enough. I hope we both get our BFPs quickly.

  5. #5
    2014 BellyBelly RAK Recipient.

    Oct 2007
    Outer South East Melbourne :)
    4,346

    I get blind pimples over most of my upper body. Face, neck, chest (even boobs), upper arms to my elbows and all the way down my back sometimes even on my bum. They are very painful to the point they are distracting and I pick at them until I bleed. I hate it. The pill I take stops that but of course I can't take it when TTC. ATM the combination of diet & metformin (diabex XR) is what is keeping them under control but sometimes on will slip it's ugly head through.

    Negrita, I can't imagine how much harder it is for you, having endo on top of PCOS. PCOS on it's own is bad enough. I hope we both get our BFPs quickly.

    Mine start of as blind pimples and then they get MASSIVE and sooo painful, to the point i sometimes cant walk without being in pain cause of the friction of my thighs rubbing together they only relief is when they burst, but then thats gross, cause it takes ages to drain and i have to keep changing the dressing - im hoping being on Diabex is going to help with it as im sooo over being on high dose AB's probably every 2nd month, not to mention the thrush that the AB's inevitably cause - its just a vicious cycle!

    Yes, the endo is a pain Rowellen (literally and physically!!) - i really thought after having a bub it would disappear or at least get better (apparently in 70% of cases pregnancy gets rid of it) but i guess i wasn't one of those lucky women - Im back to see my endo specialist on 18 May, so im just bracing myself for him telling me i need to undergo another laparoscopy - but i guess the "bonus" of that is that i will be all 'cleaned out" in the plumbing area, so maybe i'll get a bfp sooner rather than later

    Big hun, i really hope we get our bfp's quickly too!!

  6. #6
    Registered User

    Jan 2009
    In my own little fantasy world
    2,946

    Lots of hugs for you Negrita. It seems like luck is not on your side ATM. I hope that improves for you. I guess someone has to be in the minority but it is so unfair that it is you. You seem to have a wonderful positive attitude though - your posts are always uplifting in our TTC thread.

    1stTimeMumma - I look forward to seeing your birth announcement - more proof that doctors can be wrong. Here's 3 of us that have PCOS who have all conceived naturally (pretty much).

    It's interesting how insulin can affect so many things. It seems just about everything that's wrong with me is connected to that one little thing. I have a recurrent thrush problem. An offhand comment from a chemist connected it to sugar levels. I was buying diabex & a thrush treatment at the same time and the chemist asked if I was diabetic as thrush loves sugar. My doctor had never mentioned it. I'm not diabetic but the connection to PCOS was to close to ignore. While on diabex, pregnant or breastfeeding, I've hardly ever had thrush. Maybe 3 or 4 times in 3 years compared to every month normally. I also had a rather large baby (4.37kg). I've heard that GD can cause large babies - again sugar levels. I didn't have GD that I'm aware of but perhaps my levels were slightly up? Who knows. I might ask my doctor to keep a closer eye on it next time.

  7. #7
    2014 BellyBelly RAK Recipient.

    Oct 2007
    Outer South East Melbourne :)
    4,346

    Lots of hugs for you Negrita. It seems like luck is not on your side ATM. I hope that improves for you. I guess someone has to be in the minority but it is so unfair that it is you. You seem to have a wonderful positive attitude though - your posts are always uplifting in our TTC thread.
    Aww thanks hun i try to stay as positive as i can, but like any normal human, it does get me down some days! - but i just try to remind myself, that there is always someone, somewhere in the world dealing with a lot worse, and i shouldn't think the world revolves around me

    It's interesting how insulin can affect so many things. It seems just about everything that's wrong with me is connected to that one little thing. I have a recurrent thrush problem. An offhand comment from a chemist connected it to sugar levels. I was buying diabex & a thrush treatment at the same time and the chemist asked if I was diabetic as thrush loves sugar. My doctor had never mentioned it. I'm not diabetic but the connection to PCOS was to close to ignore. While on diabex, pregnant or breastfeeding, I've hardly ever had thrush. Maybe 3 or 4 times in 3 years compared to every month normally. I also had a rather large baby (4.37kg). I've heard that GD can cause large babies - again sugar levels. I didn't have GD that I'm aware of but perhaps my levels were slightly up? Who knows. I might ask my doctor to keep a closer eye on it next time.
    Yes, definitely the sugars can affect how many thrush infections you can get! I had thrush for the first time ever 2 weeks ago, i didnt know what was going on!! When i went to my GP the first thing he said was coupled with the AB's im taking and my elevated sugar levels, thrush would have found a "perfect" environment to grow - wow your bubba was large! - im assuming that at the 28 week glucose test, it came back clear? - my DD was 7 pounds 14 ounces (3.6kg) but i daresay had i not been on insulin for my GD she wouldve been much larger!!

  8. #8

    Jul 2009
    Australia
    5,102

    1stTimeMumma - I look forward to seeing your birth announcement - more proof that doctors can be wrong. Here's 3 of us that have PCOS who have all conceived naturally (pretty much).
    Thanks hun

    I am very excited and feel so lucky everyday. She is my miracle bub. And yes doctors can be very wrong, its just a matter of changing things in your life and you'll be surprised at what you can do.

    I'll be to my lucky stars that pregnancy has settled down my pcos and the same goes for my insulin resistance id love to get down to my goal weight and just feel healthy again and be able to live without pain.

    And i hope that they find a cure so that my baby girl doesnt have to go through what i did or more i hope i havent passed it onto her