thread: PCOS Support

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  1. #1
    Registered User

    Jan 2009
    In my own little fantasy world
    2,946

    I get blind pimples over most of my upper body. Face, neck, chest (even boobs), upper arms to my elbows and all the way down my back sometimes even on my bum. They are very painful to the point they are distracting and I pick at them until I bleed. I hate it. The pill I take stops that but of course I can't take it when TTC. ATM the combination of diet & metformin (diabex XR) is what is keeping them under control but sometimes on will slip it's ugly head through.

    I'm not overweight but I really struggle to keep my weight down. I eat almost nothing but still put weight on. I'm trying to lose about 5kgs to get back to my pre-pregnancy weight. I had lost 2.5 kg (it took 2 months) but we went away for a couple of nights (yes just 2 nights) and I put on 1.5 kgs Back to the hard slog again.

    Negrita, I can't imagine how much harder it is for you, having endo on top of PCOS. PCOS on it's own is bad enough. I hope we both get our BFPs quickly.

  2. #2
    2014 BellyBelly RAK Recipient.

    Oct 2007
    Outer South East Melbourne :)
    4,346

    I get blind pimples over most of my upper body. Face, neck, chest (even boobs), upper arms to my elbows and all the way down my back sometimes even on my bum. They are very painful to the point they are distracting and I pick at them until I bleed. I hate it. The pill I take stops that but of course I can't take it when TTC. ATM the combination of diet & metformin (diabex XR) is what is keeping them under control but sometimes on will slip it's ugly head through.

    Negrita, I can't imagine how much harder it is for you, having endo on top of PCOS. PCOS on it's own is bad enough. I hope we both get our BFPs quickly.

    Mine start of as blind pimples and then they get MASSIVE and sooo painful, to the point i sometimes cant walk without being in pain cause of the friction of my thighs rubbing together they only relief is when they burst, but then thats gross, cause it takes ages to drain and i have to keep changing the dressing - im hoping being on Diabex is going to help with it as im sooo over being on high dose AB's probably every 2nd month, not to mention the thrush that the AB's inevitably cause - its just a vicious cycle!

    Yes, the endo is a pain Rowellen (literally and physically!!) - i really thought after having a bub it would disappear or at least get better (apparently in 70% of cases pregnancy gets rid of it) but i guess i wasn't one of those lucky women - Im back to see my endo specialist on 18 May, so im just bracing myself for him telling me i need to undergo another laparoscopy - but i guess the "bonus" of that is that i will be all 'cleaned out" in the plumbing area, so maybe i'll get a bfp sooner rather than later

    Big hun, i really hope we get our bfp's quickly too!!

  3. #3
    Registered User

    Jan 2009
    In my own little fantasy world
    2,946

    Lots of hugs for you Negrita. It seems like luck is not on your side ATM. I hope that improves for you. I guess someone has to be in the minority but it is so unfair that it is you. You seem to have a wonderful positive attitude though - your posts are always uplifting in our TTC thread.

    1stTimeMumma - I look forward to seeing your birth announcement - more proof that doctors can be wrong. Here's 3 of us that have PCOS who have all conceived naturally (pretty much).

    It's interesting how insulin can affect so many things. It seems just about everything that's wrong with me is connected to that one little thing. I have a recurrent thrush problem. An offhand comment from a chemist connected it to sugar levels. I was buying diabex & a thrush treatment at the same time and the chemist asked if I was diabetic as thrush loves sugar. My doctor had never mentioned it. I'm not diabetic but the connection to PCOS was to close to ignore. While on diabex, pregnant or breastfeeding, I've hardly ever had thrush. Maybe 3 or 4 times in 3 years compared to every month normally. I also had a rather large baby (4.37kg). I've heard that GD can cause large babies - again sugar levels. I didn't have GD that I'm aware of but perhaps my levels were slightly up? Who knows. I might ask my doctor to keep a closer eye on it next time.

  4. #4
    2014 BellyBelly RAK Recipient.

    Oct 2007
    Outer South East Melbourne :)
    4,346

    Lots of hugs for you Negrita. It seems like luck is not on your side ATM. I hope that improves for you. I guess someone has to be in the minority but it is so unfair that it is you. You seem to have a wonderful positive attitude though - your posts are always uplifting in our TTC thread.
    Aww thanks hun i try to stay as positive as i can, but like any normal human, it does get me down some days! - but i just try to remind myself, that there is always someone, somewhere in the world dealing with a lot worse, and i shouldn't think the world revolves around me

    It's interesting how insulin can affect so many things. It seems just about everything that's wrong with me is connected to that one little thing. I have a recurrent thrush problem. An offhand comment from a chemist connected it to sugar levels. I was buying diabex & a thrush treatment at the same time and the chemist asked if I was diabetic as thrush loves sugar. My doctor had never mentioned it. I'm not diabetic but the connection to PCOS was to close to ignore. While on diabex, pregnant or breastfeeding, I've hardly ever had thrush. Maybe 3 or 4 times in 3 years compared to every month normally. I also had a rather large baby (4.37kg). I've heard that GD can cause large babies - again sugar levels. I didn't have GD that I'm aware of but perhaps my levels were slightly up? Who knows. I might ask my doctor to keep a closer eye on it next time.
    Yes, definitely the sugars can affect how many thrush infections you can get! I had thrush for the first time ever 2 weeks ago, i didnt know what was going on!! When i went to my GP the first thing he said was coupled with the AB's im taking and my elevated sugar levels, thrush would have found a "perfect" environment to grow - wow your bubba was large! - im assuming that at the 28 week glucose test, it came back clear? - my DD was 7 pounds 14 ounces (3.6kg) but i daresay had i not been on insulin for my GD she wouldve been much larger!!

  5. #5
    Registered User

    Jan 2009
    In my own little fantasy world
    2,946

    Aww thanks hun i try to stay as positive as i can, but like any normal human, it does get me down some days! - but i just try to remind myself, that there is always someone, somewhere in the world dealing with a lot worse, and i shouldn't think the world revolves around me
    That's so true. There is always someone who has been through worse and we have the benefit of modern medicine. Imagine trying year in year out pre u/s & blood tests not knowing what was wrong! We are lucky really.

    - wow your bubba was large! - im assuming that at the 28 week glucose test, it came back clear? - my DD was 7 pounds 14 ounces (3.6kg) but i daresay had i not been on insulin for my GD she wouldve been much larger!!
    I can't honestly remember even having it. Seems so long ago. I didn't know about the GD/size relationship until after DS was born so I wouldn't have thought to ask for it. My ob wasn't at all concerned about me as I had a perfectly normal pg with no alarming symptoms whatsoever (until he decided he was comfy in there and stayed a few days longer than he was supposed to ). All my scans were measuring to dates though and she thought he would be an average or even smallish bub - around the 7 pound mark. She was as surprised as I was to see how big he was. Next time I will make sure I ask and pay better attention to my diet.

  6. #6
    2014 BellyBelly RAK Recipient.

    Oct 2007
    Outer South East Melbourne :)
    4,346


    I can't honestly remember even having it. Seems so long ago. I didn't know about the GD/size relationship until after DS was born so I wouldn't have thought to ask for it. My ob wasn't at all concerned about me as I had a perfectly normal pg with no alarming symptoms whatsoever (until he decided he was comfy in there and stayed a few days longer than he was supposed to ). All my scans were measuring to dates though and she thought he would be an average or even smallish bub - around the 7 pound mark. She was as surprised as I was to see how big he was. Next time I will make sure I ask and pay better attention to my diet.
    i just noticed your DS was born not long after my DD (she was born 21 Jan 09)! - so was the glucose tolerance test not part of your care, you didnt have to drink that horribly sweet drink and then sit around for an hour and then have blood taken? - i thought it was standard pregnancy testing?

  7. #7
    Registered User

    Jan 2009
    In my own little fantasy world
    2,946

    No I didn't do that test. I have done that before when I was being diagnosed for PCOS but not when I was pg. DS was actually due 24/1 but he just didn't want to come out. He was determined to be a Feb bub lol!

  8. #8

    Jul 2009
    Australia
    5,102

    1stTimeMumma - I look forward to seeing your birth announcement - more proof that doctors can be wrong. Here's 3 of us that have PCOS who have all conceived naturally (pretty much).
    Thanks hun

    I am very excited and feel so lucky everyday. She is my miracle bub. And yes doctors can be very wrong, its just a matter of changing things in your life and you'll be surprised at what you can do.

    I'll be to my lucky stars that pregnancy has settled down my pcos and the same goes for my insulin resistance id love to get down to my goal weight and just feel healthy again and be able to live without pain.

    And i hope that they find a cure so that my baby girl doesnt have to go through what i did or more i hope i havent passed it onto her