I think I will have to eliminate certain foods from my diet once I figure out what the problem ones are. He loves to feed right from the breast and we have had issues with it when he was younger but the reason I'm expressing is because he is not currently in my care. He feeds from me once a day most days (visit has been court ordered to facilitate such).
He has been having runny poos and is refluxy still and they think it may be the breastmilk (although I think it's normal) as it seems to get better on soy formula. He cannot have normal formula as he has some sort of allergy to it.
IMO, if he were feeding off the breast at each feed, the milk would be adjusted to his needs and wouldn't cause any problems.
Hun if he has a cow's milk protein allergy (which it sounds like he might if he can't have normal formula) then you cannot have ANY dairy in your diet. It's not just avoiding milk and cheese etc - it's looking for the hidden dairy that's in lots of things (look out for casein - it's milk protein). Has this been looked at with him?
He has a specialist appointment but I cannot go to it which is silly but what they have decided. I have to find out third hand what I can and cannot eat and all that jazz. So not cool
I just want to say what a fantastic job you are doing, providing your baby with so much goodness whilst you are separated from him.
I EE for 11 months and had enough to last for 12. My supply did dwindle when I EE'ed but I went on Motilium and I had more milk than my DS could take. I had to pump about 8 times a day (including 1-2 times overnight) to begin with but when my son started on solids the amount of milk he needed decreased. I think I was down to 4 pumps a day by about 9 months. I think you have already put in the hard yards and it will only get easier from here as you will soon need to make less so will pump less times a day which will make oh some much more manageable. If your supply dwindles and you want to continue Motilium (on the correct dose) should be of assistance.
You yourself could see a paediatric dietician without your son. I saw one and my son didn't go with me. This was to work out that he was in fact allergic to dairy in my milk. So you can get advice on your diet if you want to. I was told the typical culprits for causing tummy upsets with BM are dairy, egg and wheat.
Could you get the specialist to write you a letter - or at least a copy of the letter to your son's carers. That way you have less of a chance of miscommunication, and you will have some idea of the evidence on which they based their decision.
You might also want to write a letter to the specialist detailing anything you have noticed and any family history - the more information he/she has the better.
And well done for persisting in this very challenging situation.
People who are used to formula fed babies often think there is something wrong with bf babies' poo. But this sounds like you are also seeing signs that suggest a possible cows milk protein intolerance - most especially the reaction to non-soy formula. About half the babies that react to dairy also react to soy, so although it seems better it might still be causing more of the issues than any dairy in your breastmilk. I agree with surprised, if this is what it is, eliminating all cows milk protein from you diet will help. This would be easier with a dietician to make sure you eliminate all sources of CMP (did you know that you can find it in all sorts of things such as biscuits and some potato chips?). And also to make sure that your diet still contains all the right nutrients.
Keep up the great work hun. Your lo is getting so much goodness from the breast and EBM feeds that he is having. I hope you can get to the bottom of the issues.
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