Little V's dietician has had me start her on Pediasure with cows milk now that she is 1. She has been in it for a couple of weeks now, but I feel as though she isnt eating like she used to. I have to say that wasnt that great before, now it is worse. She seems fuller to me, and now isn't really drinking all of it either.
She does seem heavier, but I guess I wont really know until her pead appt in December.
I just really want to know your experiences with peadiasure, and if it made your baby eat less, like make them feel fuller. Did it do a good job with the weight gain?
The reason why I am asking is if V hasnt put on much weight come her next appt, they are looking at referring her to Westmead childrens hospital in the New Year, and they have already made another appt to the Genetics DR's for December too. I am hoping that V can show a big difference with her weight and they decide to watch and see how she goes approach.
I guess I am tired of everytime I feel like she is doing good they take us a few steps back.
We were put on paediasure and also other feeding supplements for DD severe FTT. It did help with the weight gain, although it was never used without the other program (HENS supplement program - it is the sort of stuff they put through nasal gastric tubes, but we gave it to her orally as we were trying to avoid having a feeding tube put in).
DD's paediatric dieitican said she was happy with her having around 100ml (i was making it up with cows milk instead of water as that gave me even more calories in it, water gives 200 cal for 200ml - so that is a really decent intake)
There was a study done where they gave kids different quantities of yoghurt, but the smaller ones had extra calories added so it was all even, and the kids could all work out from calorie absorption, rather than net weight, how much to eat. Kids are very very good and knowing when they have had enough (once you can get them to eat), so if she isn't finishing the paeidasure it will be because the calories really do fill up their little tummies. Maybe giver her 100ml in the morning, and 100ml in the afternoon.
We have had about 8 plus months of this, including more tests than i can recall, and a surgery - so it is a lot to go through and i understand exactly how worrying it is.
At DD worst she put on 40g in 4 months (between 6 months and 10 months), and she looked like a little starving Africian baby - it broke my heart.
At the moment we are doing well, we have taken all supplements away for a 2 months trial - i am going for a weigh in today hopefully, to see if she can gain weight without anything.
Thankyou Yael, we are trying to avoid the tubes too, she has had the tube feeding before but not due to her weight due to her coming out of induced coma back in August. It did nothing for her then and I cant see it helping her now. The pead thinks the same, but I am worried if he sends us to the childrens hospital they may suggest it. I am really hoping the pediasure helps with the weight. They are using her length for the weight she should be which is at a 6mth old weight. I have never heard of the hens supplement. I am sure they called it something different when they were giving the tube feeds in hospital.
V is having the pediasure with cows milk, which we were told to do by her dietician. The only problem is, you make it with 190ml milk the the pediasure, and she will be lucky to drink 100ml, sometimes only 50ml. She will have upto about 400ml in a day. So not really that much especially when she isnt eating.
Sorry you have had to see your little baby like that, it is very heartbreaking. I am glad things seem to be going well atm, I hope this 2mth trial proves that she can put on weight on her own. My fingers are crossed and I it all works out fine. I am so very sorry you have had to go though what you have, your poor little girl. There has to be a light at the end of the tunnel.
Beema - Thankyou for the PM, I had a look at that website, and what people had mentioned about pediasure, it helped somewhat reading the similar reactions,such as turning off food. One had mentioned that once used to it they start eating again, so fingers crossed that happens. Thankyou again hun.
I really appreciate your comments ladies, I was hoping I wasnt going to be the only on BB, that is using it. Thanks.
I will try to PM you tonight or tomorrow with a bit more information about the stuff we used. Google Calogen by Nutrica, that is the only thing that really packed on the weight for my daughter. 100g a week when we were using it a lot!
Just had her weighed today - she put on 80g in 35 days. I know they said no weight gain, or any loss and they will do more surgery, byt 80g isn't much for 5 weeks either.. i'm so worried we will head down the path of her weight plateuing, and it just takes a long time to see it on the graph, a few months, which is a long time not to be growing for my little one
Who has used Pediasure?
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it all works out fine. I am so very sorry you have had to go though what you have, your poor little girl. There has to be a light at the end of the tunnel. 
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