Oh my goodness, I had no idea it happened to other people too! I have had what Hoobley and Lulu described happen to me numerous times. I have "woken" to feel an unseen force holding me down and I am paralysed and can't call out, a week or so ago I thought DH was holding the doona over my head and I couldn't move to push him off. I just scream and scream in my head until I snap out of it. I didn't realise it has a name!

I hope you get to see the sleep specialist, I'm really interested to know what they do for you. Sorry you have been going through it for so long and have been ignored .