thread: IVF with PGD #4

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  1. #1
    Registered User

    Sep 2008
    Sydney
    752

    CP that is interesting, maybe I shoud check folate as well - my clinic recommends 1g and I've just gone down to 600mg (100mg from my iron supplement which also contains B12)

    Well done for the good test results.

    Sara

  2. #2
    BellyBelly Life Subscriber

    Nov 2005
    Langwarrin. Victoria
    1,654

    Hey there....I tend to lurk in this thread a bit as we have been saving up for ages to go for yet another PGD cycle for what seems like an eternity now. You know it wasn't so long ago I was on the only member on bellybelly doing PGD...it's great to be able to comein here and learn from all you wonderful ladies.
    Hubby and I are off to stay at a hotel in the city tonight as we are doing an IUI cycle and he has to be at MIVF at 8pm to make a deposit but I dont have to be there till 10:30am too long to hang around but not enough time for him to drive all the way home and pick me up....plus I soooooo do not do mornings. To go from home we would have to be upp at 6am and after two of those starts this week for scans I really do not want another early start.

    We have decided (and our specialist says okay shock horror!) to do a few IUI cycles and see how we go. After a few failed PGD cycles and the fact that the four times I have been prgenant have been natural conceptions we have decided that we would rather be able to fork out the cash for an IUI each month and take the risk that we may have another miscarriage due to dodgy embryos. Because at the moment to be honest having to wait twelve months to save up the required $8000 out of pocket for a PGD cycle is doing my head in. We had just saved up enough to go for a fresh PGD cycle and on Easter Sunday our 1 yr old fur baby got hit by a car and there went $2500 on vets bills in three days....grrrrr. So we will IUI for a while using an antagonist protocol and the added prednisone and clexane protocol advised by Dr. Sacks and see how we go......fingers crossed!!
    Yes...I am also one of those who has flown to Sydney to see the illustrious Dr. Sacks.....I think he know Belly belly quite from all the referrals he gets from here. We found out via the biopsy not the blood test that we have an NK cell issue....my blood workup was completely normal but my biopsy showed a level 6 times higher than normal, so ladies if you are having the NK test my gut instinct is to say have the biopsy dones as well because the blood test is not necessarily indicative of what is happening in the uterus....just my input.

    Anyways to the real reason I popped in....I have to share this amazing book I have been reading....it has just blown me away and really cemented my gut feelings on why we have yet to produce a take home baby.

    Pasted from another thread: (cos I am lazy!!)

    By the way I have just finished reading the most awesome book about the pioneering work done by Dr. Alan Beers in the area of repoductive immunology. He died in 2006 2 weeks before this book was published - I tell you, it is an awesome eye opening read and I highly recommend it for anyone who has been long term TTC.....It is called "Is your body baby friendly?" and was loaned to me by of all people my acupuncturist who had just got it as she now has two patients with immune related fertility issues.

    It's a great read.....basically he is/was of the opinion that women with as little as one miscarriage should think about investigations and it goes in depth to explain how the immune system interacts in pregnancy and methods on how to deal with it...also some very interesting food for thought on egg quality and how to improve it etc etc.....very non mainstream but very interesting stuff!! The stuff on his belief that we may NOT be born with all our allocation of eggs but actually be able to grow new ones based on more modern research is fascinating. And his thoughts on improving egg quality are so simple but just seemed to gel with me...maybe they will with you too!

    Just needed to share that!! Thanks for listening!

  3. #3
    Registered User

    Sep 2008
    Sydney
    752

    Hi Melanie, thanks for all this - do you know the author and title of the book?

    Sara

  4. #4
    Registered User

    Sep 2008
    1,350

    Hi Mel

    Thanks for posting, nice to get to know you. I am off to google your book, and see what I come up with .

    Hi to everyone

  5. #5
    Registered User

    Aug 2008
    Melbourne
    1,539

    Quick post from me...

    CP - I can completely understand where you are coming from - that you kind of want something to be wrong so you can say "ah ha", let's address that and then it will work. I really hope that Dr S can help you figure this out. He sounds amazing from what I've read.

    melbel - good luck with this cycle. I just looked at my notes from my first meeting with a naturopath - she recommended that book as well - but I haven't had time to do anything about it yet. My notes ay "Is My Body Baby Friendly" by Alan Beer.

    AFM - another trisomy! that was the reason for this m/c. So I've had a 2 different spontaneous trisomies. If I get enough embryos from this new method I am going to seriously consider PGD. I just can't go through another messy m/c situation - it's too hard mentally & physically (for me). Nor do I have the time to spare while my body recovers.

    One more week, then we are away...working from home this morning so I can get some laundry done - ridiculous.

  6. #6
    BellyBelly Member

    May 2008
    NSW
    696

    Buliej - it is good that you found the reason behind your recent MC. Like you, I had two confirmed spontaneous trisomies (most likely declining egg quality), which is why I turned to PGD. And also like you, I commenced DHEA in the hope of raising egg numbers for the IVF/PGD process. Wishing you all the best from here, hun

    Sara, Cuddlepie, WLAB and Kel

  7. #7
    Registered User

    Sep 2008
    Sydney
    752

    Hi girls,

    Very quiet in here.

    CPie: Has AF shown up? Wishing you with this cycle.

    WLAB: Keeping fingers crossed for IUI - where are you up to?

    Buliej: Hope you have a great break and please don't think about the Safety Net.

    Kel: Thinking of you, how are you going?

    WTH: Hope you are well again.

    Meredith: Thinking of you.

    AFM - very upset about Safety Net but really relieved that the changes only come into effect on 1 Jan 2009 - have discussed it with DP this morning and I will take that as the deadline to stop trying with my own eggs. We have an appointment with Dr Lok on Tuesday for a second opinion, then awaiting AF at the end of that week and will test FSH. At the moment trying to be very healthy and doing hard bushwalks every weekend.

    Sara

  8. #8

    Apr 2009
    central coast
    2,298

    Hi ladies i'm a newbie to this thread i am usually on a TTC after loss thread but was recomended to this one as i have lot's of questions and don't know where to start i will give you a quick rundown of whats going on with me.
    I am 35 and DH is 37 this is our 2nd marriage i have 3 boy's to my ex and DH has 1 daughter to his ex we wanted to have a baby together so after 5 months we were pregnant than at 12 weeks our nuchal scan showed a nuchal fold of 4.8mm so we had a 1 in 2 chance of a chromosone abnormality but a C.V.S came back all clear and we found out we were having a girl they said to have early morphology scan to check growth so at 16 weeks they suspected skeletal dysplasia then at 18 weeks it was major heart abnormalities and polydactyl of the hands and one foot with other suspected things we went to the fetal medicine unit at the R.N.S then westmead hospital fetal cardiologist and had many ultrasounds and an amnio so at 19+ weeks we were told that its some sort of genetic syndrome and she most likely wouldn't survive so we had an induction at 19 weeks 5 days and our beautiful girl was born sleeping the autopsy showed abnormalities from head to toe and we had to wait for the D.N.A results i found out today after a ph call that the genetisist and professor at RNS think they know what it is and that DH and i are carrier's of the same faulty gene we have an appt on the 10th of june to find out what syndrome or disorder she had and find out our options i have been told we have a 1 in 4 chance with each pregnancy and i have considered IVF but DH want's to conceive natrually and do CVS at 11 weeks to test for it i hope i havn't raved on i'm at a loss as to what to do next how exspensive is IVF and the whole process is scarey
    Last edited by ferrals5; July 5th, 2009 at 09:09 PM.

  9. #9
    BellyBelly Member

    May 2008
    NSW
    696

    Ferrals I am so glad you have visited here. This is a fantastic thread where you will find great support and information from women who totally understand and respect your situation.I have replied to your PM so won't repeat all the info.

    to Sara, Cuddlepie, Julie, WLAB, Lisa and Kel. Sending much your way.