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thread: IVF with PGD #5

  1. #235
    Registered User

    Sep 2009
    central QLD
    1,834

    Hi!
    Nice to see some action in this thread!!!
    My test was pretty simple and chromosome related also, it took 12 weeks with SIVF. So for that i was lucky.
    Ive had 2 cycles, one on the pill and one off. Your first cycle in some cases ends up being a trial as it doesn't work the same for all people. Thats what happened to me and my 2nd cycle was much better.
    Make sure when the time comes to start you come back to this thread, we may not be doing PGD often but we are always lurking and will give you the support you need!!!
    xoxo

  2. #236
    Registered User

    Oct 2007
    Caroline Springs
    2,341

    Thanks Jaki. Sounds like my testing might be similar to what yours what. I'm so impatient when it comes to getting things I want that even 12 weeks sounds like such a long time, lol! Definitely worlds better than 1 year though, let alone 3...

    I'm going through Monash IVF and most of my appointments will be in Sunshine with Dr Weston, but some of them (like the pgd appointment we had last week) are out in Clayton. I think Dr Weston also mentioned that at least one of the procedures might have to be done out there because that's where the pgd lab is. Although, I'm sure he also mentioned having procedures done at Western Day Surgery which is next door to his office. I'll ask again on Wednesday.

    Thanks for all the support. It's such a new thing to be going through, and with us not telling people (besides my mum) IRL, it's nice to be able to talk about it
    Last edited by ~ Mylitta ~; February 24th, 2010 at 11:35 AM. : Oops, sorry!

  3. #237
    Registered User

    Oct 2007
    Caroline Springs
    2,341

    I have wonderful news! I had my appointment with my FS today and as soon as AF comes (which is any day now) we are going to start the IVF cycle! For the first time ever it seems that having private health insurance is paying off, because when I asked about whether we would have to wait long for the lab, he said that because I'm going private (and because our test is relatively simple) that there is no wait at all for us! I was speechless (but with a big grin on my face)!

    I'm seeing his nurse on Friday to organise all the meds (unless AF shows up tonight or tomorrow morning, in which case I'll be going in tomorrow to see her). Pretty much everything will be done in Clayton due to the lab being there, but I don't mind having to drive out there for such a worthy cause

  4. #238
    Registered User

    Sep 2009
    central QLD
    1,834

    Great news indeed!!!
    Sounds like you are doing a 'short cycle' if you are waiting for AF to arrive.
    Keep us posted!

  5. #239
    Registered User

    Mar 2007
    185

    Just poking my nose back in after an absence ... looking forward to meeting everyone on their journey.

  6. #240
    Registered User

    Aug 2009
    Melbourne
    56

    Smile Checking in

    Hey Jaki and fellow PGD eans

    just popping my head in to say hello.. I will find out what I am having on Thursday. Had a couple of big alarms over the first few months with bleeding but had no bleeding for a couple of months now so will be relieved to find out all is ok on Thursday

    Hope your travels are going ok.. I understand the downs and ups of this rollercoaster ride. Hang in their chickens.. I am hoping to be proof that it does work out

    Peace and love x
    Last edited by onthefly; March 11th, 2010 at 01:12 PM. : Please remove baby or pregnancy tickers when posting in LT TTC

  7. #241
    Registered User

    Oct 2007
    Caroline Springs
    2,341

    Good luck on Thursday Onja. I hope bubs co-operates and flashes you

    I had my egg collection today and I got 10 eggs. I hope that's a good amount. The dr. wrote "well done!" in the comments section of my form under where he wrote how many eggs we got, so fingers crossed that it's good. They are being fertilised this afternoon and I should find out tomorrow how many fertilised. Then we have the pgd done on Sat, and hopefully embryo transfer on Mon...

  8. #242
    Registered User

    Oct 2007
    Caroline Springs
    2,341

    Well, things haven't gone very well Seven of our 10 little eggs fertilised and grew nicely and all seven were big enough to be biopsied today. Two of them weren't able to get any results (one had a fragmented nucleus, and the other had a problem with the cell contents not sticking to the slide). Of the other five, all of them had chromosomal problems I'm devastated. I didn't realise that I would take it this badly. I guess I had convinced myself that everything would be good the first time around. And I never thought that it would be chromosomal problems that would issue. I mean, I'm young and healthy, I thought the embies would be healthy too! They don't think the embie with the fragmented nucleus will make it to day 5, but they said that we could transfer the other embie that got no results if we wanted to. We decided not to take the risk. I mean, when 5 out of 5 that got results had problems, what's the chance that the one little embie with no results would be perfect?

    I guess we have to start back at the beginning again
    Last edited by onthefly; March 13th, 2010 at 09:12 PM. : Remove baby ticker

  9. #243
    BellyBelly Member

    May 2008
    1,110

    Big hugs to you - I'm sorry that things didn't go well.

  10. #244
    Registered User

    Sep 2009
    central QLD
    1,834

    Mylitta sorry ive not responded to your post sooner. I forget to check the site when im on ivf hiatus.

    So sorry for your results but don't give up, it seems as tho your actual cycle was very good and besides the biopsy results everything went ahead well with no complications, yes?
    So next time imagine this... everything goes smooth again but with great biopsy results!

    Im guessing you do day 3 biopsies? Im with SIVF and they do day 5-6 biopsies so if we even end up with any still big and strong enough by day 6 it is a miracle! So far we have had 2 full cycles and only 3 biopsies with 1 transfer. Which resulted in a chem preg. Also devastating.

    Let me know when your next cycle is and i promise i'll be checking on here for updates!

    xx

  11. #245
    Registered User

    Oct 2007
    Caroline Springs
    2,341

    Hi all, just popping in to give an update. We've just started our second cycle and I'm on day 3. I've been put on a higher dose of Gonal F to try to produce more eggs this time. Hopefully more eggs = more embies = more chances of healthy embies My FS is aiming for 20ish eggs, but told me not to tell anyone that, hehe. I know it increases risk of OHSS but as I had no side effects last time we are keeping fingers crossed that all goes well.

    We are still waiting on our karyotyping test results which were meant to be back a couple of weeks ago. Apparently the lab got backed-up over easter. FS said we should go ahead with this cycle anyway, as the likelyhood of our results showing something abnormal is pretty low. We can always stop the cycle if we need to.

    Jaki - Everything went rather well last time. The only hiccup was when I discovered that I had stitches inside me 2 1/2 weeks after EPU that I knew nothing about! Talk about freaking me out! Turns out there must have been some excess bleeding that they stopped by putting in some stitches, but someone was extremely naughty and forgot to inform me!

    Yes, our embies are being tested on day 3 and then transfer would be on day 5. I had a question though, and I asked the FS and got an answer, but I still wonder about it... One of our embies last time wasn't able to get any pgd results due to a problem during testing. Seeings as the test only took them a couple of hours, I wondered why they can't go back and take another cell and test that one? When I asked the FS he told me that if they took another cell it would lower the viability of the embryo and increase the chances that it wouldn't survive. I accepted his answer at the time and left the appointment. But since then I've been thinking more about it... Right now we have a frosty embryo that unfortunately will never be given the chance at life because we feel we can't take the risk that it's not healthy. So right now it has 0% chance of becoming a baby. If they had taken another cell and found that it was a healthy embie, there would be a chance that the testing process would make it not survive, but there's also a chance that it MAY have survived. So by testing another cell, surely it's giving the embie at least a higher than 0% chance at life. Does that make sense? Why wouldn't they just retest?

  12. #246
    Registered User

    Sep 2009
    central QLD
    1,834

    Mylitta i know what it feels like to have these worries/ questions and not like the answer given even tho we accept these things at the time. Like you i would have had it tested anyway. I think sometimes we need to be more firm with what we want, the doctors can give us good advice however they dont have to live with the decisions after. I wish i have been more forceful with several things in both our cycles.
    What day was this particular embryo frozen? I dont see why they cant thaw it and test it later for you if things get desperate ( FX they wont!)

  13. #247
    Registered User

    Oct 2007
    Caroline Springs
    2,341

    Jaki - I guess at the time it's easy just to think "doctor knows best", but not being tested again and not having any chance of becoming a baby doesn't seem like the best thing for the snow-embie... I'm going to discuss it again with the FS and if this situation comes up again hopefully we can do a second test. They embie grew well and survived to day 5 and then was frozen. If your embies aren't tested until day 5, then I wonder why they couldn't test mine again at day 5...?
    Last edited by ~ Mylitta ~; April 26th, 2010 at 10:44 PM.

  14. #248
    Registered User

    Sep 2009
    central QLD
    1,834

    In theory it could be tested defiantly, but it will most likely kill it as they say, still considering you wont use it anyway you may as well go for it, just be firm with them. Tell them you dont want to pay for the storage when you have no intention of using it but you want it tested just incase it survives. They only take 5 mins to thaw so its not a huge effort for them. But i imagine they will charge you for a frozen cycle so do it when you can actually use it, or save it for a future frozen cycle and they can use it as an extra

    The main difference between our day 3 and day 5-6 testing is that at day 3 they actually drill into the embryo and the biopsy is from what will actually make up the baby. At day 5 or 6 they wait until the embryo has hatched and take the biopsy from what will become the placenta, SIVF believe this is a better/safer way to do it for the embryos future development but it does mean most of my embryos cant be tested as they dont all hatch in time. So its a double edges sword really.

    x

  15. #249
    Registered User

    Mar 2009
    18

    Hi there, Im new here...some of my questions may have been answered elsewhere but I cant seem to find up to date info on PGD.
    I have had 4 m/c in the last 12months, I have had 2 D&Cs each of which testing was done on the cells. One came out inconclusive and the other had chromosomal abnormalities. My OB seems to think that I have poor egg quality, and just says to keep on trying, but I feel like I should be doing more.

    I was wondering how much PGD costs in Melbourne? and who to go and see for a consultation, any recommondations would be much appreciated

  16. #250
    Registered User

    Sep 2009
    central QLD
    1,834

    Hi Alana.
    I have PGD at Syd ivf so i can't advise you on Melb prices. A full cycle of ivf + PGD costs me just over 13k at SIVF, but im told they are more expensive than other clinics.
    Good luck.
    x

  17. #251
    Registered User

    Mar 2009
    18

    Hi Jaki,
    Is that before or after you reach medicare levi? Does private insurance cover any of this amount?

  18. #252
    Registered User

    Sep 2009
    central QLD
    1,834

    Thats is the original cost for everything. We have never had 2 cycles in the same year so the first time we got 7k back and the 2nd we got 10ish. Not sure how much we will be effected by the government changes yet either. Going again in june i hope.

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