Thanks everyone for your quick replies! I really appreciate all your honesty and advice. Good luck to all of you.
Kmn - it looks like the issue we have is that there are 5 possible gene mutations for my condition and they have had no luck finding a lab anywhere in the world that can test to see which one I have. The annoying part is that the clinic here had my disorder on their list of genetic conditions PGD is available for, but now nearly a year later they say it looks like it's not possible.
We only went for the PGD option as they specifically mentioned my disorder on their website, otherwise we were quite happy to begin our IVF a year ago without it.
Thankfully I have just turned 35 and my DH is 36 so losing time until now has not been a huge concern. Hopefully we will get it resolved one way or another in the next few weeks, the clinic has been reluctant thus far to actually say they can't do it but reading between the lines I think that will be the outcome following my conversations today.
Last edited by ladydax; August 26th, 2010 at 02:18 PM.
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