It is difficult - the overseas testing places are research institutes, and their programs and what they are able to do and how long it will take changes all the time. My condition also has multiple sites for the mutation - I was lucky that the first one tested was the one I have. But then actually creating a test and finding appropriate linked markers took two clinics and a lot of time. I was 30 when I first found out that PGD for my condition was possible (in the sense of being offered in the US, but as far as I know no-one at the time had actually done it) and started talking to the geneticists. And 35 when we finally got to the IVF cycle stage. I can really relate to the losing time issue as well - I remember being so frustrated as I felt my chances were diminishing while the science was being done. I became pregnant on my first IVF cycle, and now have a son. I can't pm you - email me (kate at katenairn dot com) if you want to chat about this some more.
Last edited by onthefly; August 27th, 2010 at 05:12 PM.
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