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Thread: Unbelievable!

  1. #1

    Default Unbelievable!

    This whole IVF journey has been one disaster after another. It's really starting to take a toll on my body, too. I have spent 24 of the last 41 days with some form of bleeding. For some reason my arthritis flares badly when I have my period, and again when it is raining. I've got my period and it's raining so feeling very sore right now.



    First... I can't start IVF because my insulin levels are too high so I get put on the pill.

    Second... after over 100 days without a period, the pill causes some breakthrough bleeding.

    Third... the clinic nurses tell me to keep taking the pill and the breakthrough bleed eventually gets so bad I'm close to needing to be admitted to hospital. Spend many days feeling faint, dizzy and generally unwell, right on top of going back to work.

    Fourth... get started on synarel, stop the pill and get to have another period only 10 days after the breakthrough bleed finally stopped. Somehow my body manages to have another heavy period when I'm still not recovered.

    Fifth... after 10 days on synarel, my estrogen levels are too high. U/S scan discovers a follicle on one ovary.

    Sixth... massive reaction to trigger shot. Incredibly sore belly for 4-5 days, still have a mark 9 days later, but it's finally starting to fade.

    Seventh... blood test prior to resuming synarel at double the dose shows progesterone levels too low, need to be started on primolut to induce AF. Discussions result in a switch to lucrin.

    Eighth... Spotting starts the night before starting primolut - told by the clinic again that it's "nothing to worry about"

    Ninth... Full on period arrives one hour after taking first primolut tablet, over a week ahead of schedule, and only 7 days after the trigger shot. Yet another heavy period with barely two weeks between the start of one and the start of the next.

    I'm going to have to yell and scream at the clinic again today - from a staff room with 15 other people and no private phone. I guess I'm going to be using the mobile from the car. There's just too much going on to be able to take the day off work, even though I'm in enough pain to warrant it.

    How can getting my period now not end up being a problem when I'm supposed to have been on lucrin for seven days prior to it? How can it not be a problem that I get my period only seven days after ovulating from a trigger shot? The only time we've been confident that I ovulated before I had an 8 day luteal phase. How can this not be a problem? I'm really wondering if the clinic will have some way of sorting out that problem if we ever get to the point where there's actually eggs to collect in a cycle.

    I'm almost starting to think that the world is trying to tell me that IVF is not for us!

    BW

  2. #2

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    Oh no BW, what a terribly traumatic experience for you. I don't have any experience with any of those treatments but I really feel for you. Can you see another specialist?

  3. #3

    Default

    MY GOD BW!

    How can they say having about 3-4 bleeds in this short space of time is normal? I dont know anything about this last med your on, and I just cant get what there trying to do?

    Maybe you should take a few weeks for your body to get back to normal and try again! I think your body is telling you to something!

    This IVF gig is so complicated, Ive felt stressed the whole time! Which doesnt help one bit-but I challenge anyone to tell me they didt feel the same way!


    Let us know how you go!

  4. #4

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    BW - Life is just not fair at times. I hate that no one can give you some real assistance with any of the troubles you are having. Have you seen any natural therapists to assist you alongside this IVF process?? One of my friends saw a naturopath to complement her treatments. And she felt it really helped her feel better physically.
    sweetie, it just sucks.

  5. #5

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    I am sorry you are having a very rough time but maybe your body is just sorting itself out after such a long period of hormonal inbalance.The huge hormone kick has sent everything haywire ... it got worse before it begins to get better.
    it isn't fair but I heard of worst IVf journeys with a happy ending and I am thinking of you.
    I would ask to speak to FS direct not the nurses if at all possible.

  6. #6
    Sammi Jane Guest

    Default

    I'm so sorry BW, I wish there was something I could say to make you feel better.

    I'm sure the doctors know what they're doing, and I'm positive that it will all work out eventually and you will have your dream!

    I know it's very stressful for you at the moment, I hope something good happens soon.

  7. #7

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    OMG your having a bad time. Im so sorry. I do how things look up for you.

  8. #8

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    Hi BW,
    I am so sorry that you are having such a bad time with it all
    I hope things get better for you soon.
    SAM

  9. #9

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    OMG
    I am so close to tears reading what you have been thru. It is so unfair.
    I am for you. Good luck and I really hope it all picks up for you.

  10. #10

    Default

    I'm having one of those days!

    Just completely fell apart after a lesson - never happens! But I guess I just have no coping skills left at all right now.

    Couldn't get a line out to call the clinic, when one was finally free, the clinic has no nurses available to talk to me! AAARRGGGHHHHHH!!!

    Will try again later.

    BW

  11. #11

    Default

    Ok, have heard from the clinic...

    I shouldn't worry about the bleeding (yeah, right! I've had more days with bleeding than without in the last 40 days, and my arthritis flares bad when I am), should continue to take the primolut (thank God it's only 7 days this time) and start the lucrin as scheduled.

    My specialist says that bleeding at the wrong time isn't going to mess up anything he's trying to do. And I'm free to take any other drugs I like at this stage. Bring on the naprosyn! And I've got valium coming on the weekend, so should be at least comfortable and happy at least.

    If I have another set back this time, I'm going to take a break. I'll book another appointment with the FS, and tell him exactly what I think!

    BW

  12. #12

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    So sorry to see youre having a hard time. I hope you have some better luck very very soon.

  13. #13
    Alex Guest

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    Hi BW, I'm glad you're booking in to see your FS again. Personally I really think they need to give you some straight answers, this is your body and your emotional state and you have every right to demand exactly what they think is going on.

    I am so sorry that you are having such a nightmare, all of the bleeding certainly does not sound normal and they should be talking to you about it.

    As you may know my egg quality is poor and so I'm seeing an acupuncturist in Mosman, Kaye Gartner, once a week. She's put me on tablet form Chinese Herbs, as well as zinc (I'm a vege - zinc non-existent!). She wants DH and I (he's also getting the needles) to try her treatment for 3 months as she reckons this is going to improve my egg quality, so hopefully the next pick-up will be with good quality eggs. Anyway, what I am trying to get at, is, Kaye recommeded a book to me "The Infertility Cure", I read the intro this morning and ended up in tears over my cereal! It's written by an American woman, a medical doctor who now practices in Chinese med and acupucture. She talks about infertility being non-existent and what it actually is, is an imbalance in our hormone levels which need to be addressed.

    Maybe you should consider (if you haven't already) acupuncture to balance your body, and then embark on the ivf? I know you are eager to get started, but after going through a few cycles myself, I am now at the stage where I am trying acupuncture to assist the ivf - and not to replace it. I do have faith that the ivf will work!

    Virtual hugs to you, the drugs do play havoc on us, you really are having a bad time

    xx

  14. #14

    Default

    Thanks for the suggestion, Alex. I'm looking at a few books that have been recommended to me, and might just order the lot online with the credit card and have a damn good read. Not tonight, though. We've got a severe storm heading straight for us - labelled as very dangerous, so I think I need to get off the computer soonish.

    I've been having acupuncture for at least 6 months now. I go to Rozelle - Leah is an angel! It's the one thing that has kept me at least partly sane through all this. Just got back from an appointment today, in fact. She said not to worry about the LPD - I had no LP support, and she's sure that with the crinone I'll go a lot better, and she's talking about putting me on herbs for LP support as well, which I'll certainly go with. I'm feeling so much calmer since my appointment - really feel like I can tackle this thing again.

    I've had instructions from the clinic that I can take whatever pain meds I need, and the cyklokapron (reduces the severity of the bleeding) at the moment - whatever I need to do to keep my strength up and keep myself comfortable.

    BW

  15. #15

    Default

    You poor love, BW, this is just getting silly! I really hope that FS has some answers for you... this has gone on long enough. Hope the pain meds help you somewhat and the bleeding stops soon.

  16. #16

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    Hi BW, I'm so sorry you are having a crap time lately!!!
    I think you need to get something more of an answer from clinic other than "dont worry". Let's face it, unless they tell you why you dont need to worry, you will probably still worry! Can you get a phone interview if you cant get into the clinic?
    Also, maybe you could try some sort of relaxation treatment. Do you do yoga or meditate? Maybe pray? Something that will take your mind into a relaxed state should also help the body to relax and do its "thing". Mayby DH can give you a nice massage with candles, pretty music and perfumed oils? He will really feel he is helping you that way too and it doesnt cost anything!
    You must be feeling so frustrated and justifiably so! Hopefully "they" will get your cycles all sorted out soon. Just a thought, are you taking anything to help your body recover from all your bleeds? Extra iron or something? You should find heaps of suggestions on the net.
    Massive hugs for you, sweetie, I hope you feel better soon
    Sazz:hugs:

  17. #17

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    BW - sending you a really big These ongoing bumps must be horrible and I have nothing to give you to make it better, only to say you have all the support you need anytime you need it.

    Can you speak to the FS directly ASAP to go through your questions??? There have been too many unanswered questions and you need the answers to make the most of each opportunity (without driving yourself insane).

    I hope the bleeding and the pain settle for you (and enjoy the drugs!!!!)

  18. #18

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    BW - Just letting you know I'm thinking of you too - particularly being a teacher and having to cope day to day with all this going on.

    Sending you waves of energy!

    Gargy

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