august...
Well she is finally here. Born on the 29th and 210am. I got discharged today, and well of course she is in the NICU. It's hard, really hard. She's doing good so far, and hopefully she only gets better. I'm sorry I'll tell you about it more soon, really tired. But hang in there and enjoy your pregnancy!
Hi Boychuck, so good to hear from you. Sending you best wishes and I'm sure your beautiful daughter will be home before too long. I look forward to hearing more when you have recovered and I hope you are doing ok being away from her while she is in the NICU. Thinking of you, you're amazing you did it!
August,
Sorry it's been such a long time since I last replied. Great news on my end, our little angel, Brianna, came home from the hospital last Tuesday. Only 14 days in the Nicu and everything seems to be going as if she never had gastroschisis. YAY! Although those 14 days well long, very long. I'm so glad she's home and in my arms. My prayers are with you and your baby, if you have any questions at all, please ask. Take care.
Hi Boychuck,
Words cannot express how happy I am for you and your little girl Brianna. Wow 14 days in NICU must be a record for a gastroschisis! I can only hope things will go half as well for us. My little boy is doing great. Growing well and there is no obvious dialation of the bowel. I only have about 5 weeks to go and we are really excited. How did you give birth vag or c-s? Did Brianna have a primary or a staged repair? Did you see the bowel and what colour was it? Any tips on how to get through those days in NICU?
Hi Boychuck,
Words cannot express how happy I am for you and your little girl Brianna. Wow 14 days in NICU must be a record for a gastroschisis! I can only hope things will go half as well for us. My little boy is doing great. Growing well and there is no obvious dialation of the bowel. I only have about 5 weeks to go and we are really excited. How did you give birth vag or c-s? Did Brianna have a primary or a staged repair? Did you see the bowel and what colour was it? Any tips on how to get through those days in NICU?
Hi August,
Just want to say thank you. I apoligize for not getting back to you sooner. With my two girls it's very difficult getting a free moment to myself.
Over here in the states the average for a gastro babies stay in the NICU is 3 weeks. My baby girl did very well so she came home in 2. But I didn't set the record. There was a couple whom had a gastro baby 2 or 3 years ago in the hospital where I had Brianna, and there baby was only in the hospital 8 days. I had my baby in one of the best hospitals in the country though, the presidents hospital. Hopefully your baby boy won't have a long stay neither.
I delivered Vaginally, they wouldn't allow me to have a c-s unless there was an emergency. After the baby was born the took her so quickly to clean her up to get her down to the NICU, it was hard to see her bowel. But to me it looked brownish maybe a little pink. But it's hard to tell she was covered in blood. (sorry don't mean to gross u out) They did let me see the baby for about 5-10 secs, long enough to let me see what she looked like and give her a kiss, and then they rushed her to the NICU.
Primary repair, they would have done the procedure within minutes after getting her stable but we had to wait on the surgern to get to the hospital. So he came and talked to after seeing her, He told me she looked great, so he decided no surgery, he just pushed all the bowel and the stomach back in her belly and then took the umbilical cord over the open wound so that they didnt need to be any stiches. They actually did it right in the NICU. He came back to tell me everything was good to go about 30 minutes later, and that I could go see her. She was 2 days old when I finally got to hold her. It was harder seeing them take her to the NICU then not being able to hold her, because I still got to touch her. LIke I said everyday we had good news that she was doing better and everything was going on track. They started her feedings at 1 weeks, slowly increased and a week later she was home. She had a 3 bowel movents, from what was left in her from me after puttin gthe bowel back in. Then she didnt have anymore until they started to feed her. I think she had a bowel movement within 24 hours of feeding. That was the best news besides when they told me she was coming home.
I wouldn't know what to tell you to make it easy to get threw the days at the nicu, yes we always had good new, but some days everything stayed the same, and i would asked when they would think she would come home and some nurses would tell me several weeks. It was the hardest thing I ever had to do, I think just about everyday I broke down and cried my eyes out. But what help me is looking forward to the next step, taking it from day to day. After the first week, and she started eating It was harder for me not to have her home because she was doing so good and wasnt home. But before I had her, I thought things would be alot harder, and I didnt think I would be able to handle it as weel as I did. But I did alot of praying, probably the most I ever did in the 2 weeks she was in the hospital, then in my whole life. I put all my faith in god, and he help me threw it, and I'm sure he help you to. I know you'll do find and so will your little boy, I'll be praying for you. Befor eyou know it he'll be home and you wont be getting any sleep, lol. Well goodluck. Please keep me posted,I hope I answered what you needed, if you have any more ?'s please ask. Take care of yourself and your little one!
I forgot, because of no stiches and they way they put her umbilical cord over her opening in my belly you can't even tell that she had gastro. It looks great, it's an outtie as of now, but the doc's said that within the next month or so it was be outwards. YAY!
Well we finally got a date for the big birth-day, July 31st! Not long to go! Thanks Boychuck, I hope all is still going so well for you and Brianna. I cant believe she is over a month old already! It sounds really wonderful how her repair was done, I wonder if they would do that here if it was possible? I'll be finding out soon enough!
On our ultrasound this time the big bowel was also visable (usually just the small) and reported as dialated 1.6mm. I knew to expect a report like this at some point though!
But my little boy is growing so beautifully and he would have been a very big baby had I of been able to carry him to 40wks or over. He is already 6lb and will probably be a 7 and a half pounder when he arrives 3 weeks early! So at least he is big and very healthy!
I am well, pretty much all organised and waiting patiently, I'm really excited, ready to tackle my induced labour head on and finally meet my little one!
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I knew to expect a report like this at some point though!
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