thread: Gastroschisis

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  1. #1
    bindyangel Guest

    I'm sorry I didn't get to read all the posts. Wow, August, you will just about be able to see your little one!! How exciting and terrifying for you at the same time. I know part of me wanted to see my baby, the other part wanted me to keep her in my belly for ever as she was safe.

    I truly hope everything will go by the textbook and I will be thinking of you!! (I know of a support forum for gastro if you ever want the link just let me know. Its based in UK and I'm the only aussie, but there are a few americans there too)

    I'm sure things are just getting cramped in there, but it never hurts to go get checked.


    Our story
    I was induced at the Royal Brisbane at 36+6 days. They just started with the gel, but thats all I needed. 10 hours after the gel, I gave birth to our little girl. She was starting to get stressed towards the end, so they ended up vacuuming her out. They wrapped her belly up in clingwrap type stuff and wrapped her in a blanket and gave me a quick cuddle. She wasn't stressed afterall and got apgars of 8 and 9.

    I was too concerned for them to take her down to the NICU and "fix" her.

    They managed to do a primary closure without anaesthetic or stitches,just baby panadol. She was sound asleep less than an hour after the "surgery".

    We got to give her a cuddle on the second day. It was so exciting to see tiny little fingernail sized poos when she started bowelmovements.

    Unfortunately she had one incident that set her back a few days with the central line suspected of being infected, however she recovered very quickly and at 3 weeks we started feeds and were able to increase them dramatically so she was home at 3.5weeks.

    We breastfed for 7 months, however her latch wasn't fantastic after getting used to only having a dummy to suck. She started solids at 4 months and LOVED and tolerated everything so very well. Of course I was so paranoid of her tolerating foods it would take me quite awhile to change foods.

    She was also the most fanastic sleeper.

    The only problem we had was the beginning of this year, she suffered very severe stomach cramps. She had gotten a bit blocked up in there (she needs to have a bowel movement every day) and the blockage actually caused a urinary tract infection as it was pushing on her urinary organs.

    Apart from that, she can eat everything (though juice and sweet biscuits limited to only one in a day..they seem to cause a little stomach ache).

    I'm excited and nervous about her belly button being fixed. I should be seeing our surgeon in the next few months.


    Well sorry for the long winded story.

    I really and truly wish you all the best.

  2. #2
    Registered User

    Mar 2007
    351

    Smile

    We are home!!! Thanks so much to everyone who supported me here throughout the pregnancy I really cant say how much it means to me!!

    Lucas has been home for three days now after only 16 days in NICU. He was born via emergency C-S on the 22nd July so I'm really glad that I presented myself to the hospital the day of my last post! I've posted my birth story on BB if you would like to read more about the birth.

    My little man did amazingly and the surgeons were able to do a primary repair. He was in a bit of pain in those first few days but after that he did not need any pain killers at all.

    It was really hard to see him so hungry, he almost sucked the teat right off the dummy but had no troubles latching on once he got on the breast on day 10. The long days (and nights) in NICU were harder for us than it was for him I think. He was so brave and we are so proud of him for getting through it.

    We are all now home as a family and I am so thankful that everything went so well for us. It is just amazing what the doctors can do and he is perfect in every way. We are truly blessed!

  3. #3
    boychuck21 Guest

    Hey august,

    Congrats. I'm so happy for you. 16 days that's great. I hope all it well with you and the little man. Enjoy while he's young, they grow so quick. take care

  4. #4
    Registered User

    Mar 2007
    351

    Smile

    *UPDATE*

    We are all going well and Lucas is happy and healthy. He is over 3kg now which is great and his wound has healed nicely. He is growing fast and loves his baths, toys and big cuddles from daddy. Hope your little beauties are doing well too.

    August x

  5. #5
    Registered User

    Mar 2007
    351

    Smile

    hi bindy!
    Things are going great! How have you been? I'm glad you popped back in to see us. Lucas is getting big; he is 3 months this weekend and is a happy smiley baby. He is a great eater and sleeper and is a very easy going baby!

    How is your little girl and how old is she now? Is she still having cramps and have you met with the surgeons? I have had to treat Lucas for constipation. He also needs to go at least once a day otherwise it causes him alot of discomfort. This started happening when we switched to formula feeds though so constipation is not uncommon, but of course I'm a bit sensitive about anything to do with his bowels!

    His scar is completely healed and looks good. He ended up with a bit of a belly button, you can see the hood, and the scar runs horizontal, about two inches, to his right. Its amazing to see him now when looking back at the photos of his time in NICU, he has done so well and we are so proud of him. I can send a pic of his belly if anyone is interested in checking it out!

    Could I ask you Bindy more specifically about how she went when she started solids? How was it on her bowels? I’m also a bit nervous as to when the right time would be to start. I’d love to try him with something after xmas but I’m not too sure. Lucas was born 36+2wks so very similar to your little girl and her corrected age as a baby.

    So everything is going well for us, and Boychuck, if you get this update I’d love to hear how Brianna is going and happy birthday to your other little princess too BTW!

    MODS ~ Could we maybe move this to the NICU/premmie thread?