hi, I've just posted this under another relavent thread but also wanted to create a new topic. I had my 12 week scan on Monday, picked it up from the imaging centre to take to the midwife the next day so no-one explained anything to me, figured out how bad it was myself.....
Nuchal fold was 3.6 and highly suspicious of downs. Hydrops also observed (this is a build up a fluid in two or more fetal compartments - for us around the head and abdomen) When we saw the midwife she said everything was fine, and was asking if we want to do birth classes (all the trivial stuff) etc, I explained that we were high risk for downs from the scan result and didn't know what was going to happen. If it hadn't been for me sobbing I don't think she would have done anything...She sent us to see Genetic counsellor and we waited for the combined blood test screening result. That put us at
1 in 53 risk for downs as PAPa and Hcg were low.
She scheduled me in for a CVS yesterday (yuk!) and scan again showed excessive hydrops along with cystic hydroma and all very dire. We assumed there would be downs/turners but FISH has come back clear. Now going to hosp again on Wed for BT to check for infections and listen to heart. They're not sure why the hydrops is there but it has a very high mortality rate and we're not very optimistic.
Anyone had hydrops before???
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