Hi my name is Stephanie and I run a support group on yahoo for this condition. I also suffer from it as well. My son Chris was born in 2000 with bilateral brain damage (one porencephalic cyst and one supposedly arachnoid (I think it is also porencephaly) ANyway there is treatment for this condition and I had it done last year and gave birth to a healthy (but premature) baby boy named Jason. He is now 9 months old and completely healthy. My old Chris is healthy but does have special needs from the brain bleeds. My doctor James Bussel is New York in the USA BUT my support group has a few ladies from Australia in it who have gone on to have healthy babies as well. I am not sure if I am allowed to post a link to our group but if you go to yahoo seach the groups for neonatal alloimmune thrombocytopenia and you will find us. There is also a link to us on wikipedia

Please if there is anything to do to help please ask. NAIT is not as rare as you may think it is just you have to find a doctor who has a specialty in it.
Steph