Twin Reversed Arterial Perfusion

[Rommy'sMummy]

How sad to have one lost twin still inside your friend.

I knew a mum who had twin to twin transfusion and she was flown from Adel to Bris for surgery on her placenta to correct it! She was about 26 weeks then I think. Both twins survived but came early with one nearly twice the size of the other.

Maybe they can do something like that for your friend and her surviving twin?

Wishing her luck. Just be there for her and be open to talking non-stop about her situation one moment and then not at all the next - try and be led by her.

Good luck

[The[cookie]Doctor]

Hi Nai.

The outcome isn't always bad, so please try not to stress. It is an awful diagnosis but sometimes there can be misdiagnosis with TTTS or even with it being early stages it may not progress.

I'm not sure if you followed but Mum's twins had early markings of TTTS and she was monitored weekly and all considered scheduling for laser in Brisbane. In this case it corrected itself and although born early the twins were of normal size. Some effects were there, I think the slightly smaller one had some liver problems - but most of the others were related to premature birth.

They will monitor your friend closely - it may not progress () but in some cases it progresses very quickly and dangerously. I have read a story about a woman who was diagnosed at 17 weeks and by 21 weeks there was severe developmental differences in growth.

Anyhow, the only good news is that if it does severely progress - in this case the laser surgery would be less 'risky' per se if the other twin has passed. How sad for your friend though.

All my thoughts and wishes. xo

[Nai]

Thanks for your advice - we have good news! The scan today revealed that the healthy twin is ok and the non-viable one is disintegrating naturally so will be reabsorbed by her body. They will be keeping a close eye on her though for the rest of the pregnancy.