Hi Bernie. Welcome to BB. I'm sorry you've joined us under such stressful circumstances.
My cousin's son was diagnosed with ventriculomegaly at her 20 week scan. The prognosis ranged from having a normal, healthy baby to having a child with disability (ranging from mild to severe) to stillbirth or neonatal death. She was offered the opportunity to abort and flatly refused even though she already has a daughter with fatal genetic condition. Her son was born slightly premature (36 weeks) but is a healthy, happy 18 month old.
Sometimes I wonder if all the antenatal scans/tests are worth it. In my cousin's situation, they had identified that her son had a higher risk of disability or death, but it was far from a diagnosis. At least she could prepare herself for the worst I guess, but it caused her a lot of stress, which in her case was unnecessary.
I hope it helps to hear of a happy ending. And I hope you get to have one yourself. All the best
thanks so much everyone, i still havnt heard anything its just a waiting game really i hope anyone that reads this that went through the same thing had large ventricules will please tell me there story??
Hi Bernie,
I just wanted to say Hello & let you know that I am going through a similar thing at the moment. At our 19 week scan our baby had ventricles of 10.x mm and 11.x mm. No other issues were found at all so it is called mild isolated ventriculomegaly. We saw the gamut of specialists at the hospital and it was all very scary. We have had very conflicting advice from the hospital as our case is a bit weird in that it resolved within 1 week (at a 20 week scan) down to normal levels (7/8mm) which was found while we were prepared for the amnio (which we then didn't do).
In the meantime I did a lot of reading about the condition and we also spoke to geneticists, neurologists and 4 different ultrasound obstetricians - all of whom gave slightly differing advice/outcomes. We have been told that even though the ventricles resolved that we are still in danger for chromosomal issues and brain structure stuff too - so we might still have an amnio and MRI. They have mentioned terminating the pregnancy to us as well and it is all pretty awful to contemplate.
What is the size of your baby's ventricles? Have you got your amnio results back yet? I'm sure that the doctors have told you that it can sometimes reslolve itself and doesn't always mean the worse case scenario. Particularly if you have ruled out viruses and chromosomal issues as it sound like you have done.
I'm so sorry you have to go through this as well, it is very stressful. I really hope you results for all the tests are good news.
Andrea
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