It's frustrating when no-one posts. I've been there. Just remember that the NT told is an indication that something could be wrong, it's not a diagnosis so it could mean absolutely nothing.
My bubs NT measurement was 4.2 so not as high as yours but quite a bit higher than it should have been. We were given a 1/37 risk of DS, the risk of the other trisomies were low. No abnormalities were found in our amnio and no abnormalities were ever seen in any of our scans. Brock was born 9 weeks ago and did not have DS nor any other detectable abnormalities, so completely "normal". I don't think I ever really believed that this was going to be the outcome until he was in my arms.
The next couple of weeks while you wait for a scan are going to be hard. Try to keep yourself as busy as possible so you don't have much time to think about the possibility of a bad outcome. More than likely everything will be fine when you have the scan done. It's quite normal for the doctor not to want to discuss the what if's. My doc was like that too, and continued to be like that when other issues came up later on that were unrelated to abnormalities. Best of luck with the scan.
Last edited by satya; August 25th, 2008 at 03:11 PM.
OP
i wish i could give you a story to help you , but i cant
I did read however that 90% of NFold tests can give a false positive.
There has been lots of research done in Britain about the technique and the stress it unncessarily puts parents to be under and how 90 % of those that got a postitive, ended up with healthy babies.
There was a heartbreaking story in the Womans Weekly last month on a 60 minutes reporter who got a high NF test. It then gave these stats that i have quoted. Its point was the risk of having an amino/CV against the risk of the test being wrong!
Hang in there, i have a feeling in my 'waters' that all will be good!
With dd, the NF came back at 6, like yours. We were 1/19 of downs and 1/30 of trisomy 18. After the cvs, the results came back all clear. When DD was born, all we noticed was that she had a thick neck, which in time looked normal!!! She doesnt have any problems, besides her hip dysplasia...obviously not related to NT! We had genetic councelling and were only told it indicated risks of chromasomal abnormalities. HTH and good luck.
I am new to this forum - I have just posted in the "due Feb 16-28 2009" thread - but this thread is what has inspired me to post.
Like OceanPrincess, I had a high NF measurement (6.1) and subsequent CVS, with no sign of genetic issues. I also have twins. The initial NF US showed one looked great (low NF), while the other is/was a bit small and had the high NF. I am waiting on the 16 weeks US too, to see if they can detect cardiac issues, or maybe twin-to-twin transfusion syndrome.
Has anyone else come across any other possiblities? I hope all is well, but I was given a bit of the "ONE baby may be OK, but the other one is stuffed" at the initial scan which I haven't really recovered from...
My fingers are crossed for you OceanPrincess, and I'd love to hear how you go...
my wife and i have been through this TWICE... first with our 2nd daughter who measured 5.9mm at 12 weeks and came out just fine (she just turned 3 and is quite normal) after a barrage of tests and odd attempts at explanation. but we still believe in the science of it and had the fold measured when my wife got preganant with our 3rd...lo and behold the measurement came back 6.1mm! same battery of tests to be sure, cvs to rule out chromosomal abnormality, lots of very precise ultrasounds (we live in los angeles and have access to some of the best ultrasound 'artists' around) fetal ekgs, genetic testing etc. our son was born feb 5th and, again, he's quite normal. i'd even say both of them are pretty exceptional, but then again they're my kids.
when we first got the high measurement on my daughter almost 4 years ago, the method was somewhat new and there was nothing but bad news on the boards when i went on. but my wife was, is, patient, trusted the science and the idea that THE MEASUREMENT ISN'T A DIAGNOSIS, JUST A SIGN THAT SOMETHING MIGHT BE ABNORMAL. so we stuck it out both times (the second time feeling only a bit less nervous) and got two great kids out of it. i hope all your results come back positive and you have the same luck we have. but it can happen.
as for why the measurements were so high in both of my kids, i'd love an answer too!
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