thread: Anencephaly

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  1. #1
    Registered User
    Add Rach75 on Facebook

    Oct 2005
    Moura, QLD, Australia
    3,754

    :hugs: Debmac I am so sorry for your losses

    my beautiful Katy Rose was diagnosed with anencephaly @ our 20 week scan at the time I knew nothing of the disorder, was sent to local hospital where they presumed I would induce then and there, I went home and made the heartbreaking decision to induce my baby at 21 week


    I dont really know what you want to know but please feel free to ask away

    your dream to give your little boy a baby brother/sister comes true

  2. #2
    Debmac Guest

    Rach75

    I am so sorry for your loss of Katy Rose, it is a heartbreaking decision, the hardest we have ever made. I was the same as you with the first Angel we lost, I knew nothing of the disorder, I read a bit about it and tried to understand it but still didn't fully understand, then with our 2nd Angel, I had done everything I was supposed to do and it still happened, so I read a lot more and found out that there was nothing else I could really do to prevent it, I had done everything, it was just meant to be, which still breaks my heart to say.

    We have had some test results back and apparently it is not a chromosomal problem, which is supposed to be best case scenario, so therefor it is not something between my husband and I, but there is something happening after we have conceived.... it is so difficult to try and think that everything will be OK when we don't really understand how else we can try and fix it.

    I have booked in to see a gentic counseller at Monash Medical Centre, so I am hopeing that all the test results will be back by then and they can shed some light on what is happening.

    Your little boy is gorgeous, you should be very proud. Thanks for your post.

    Love Deb