I am so sorry for your loss of Katy Rose, it is a heartbreaking decision, the hardest we have ever made. I was the same as you with the first Angel we lost, I knew nothing of the disorder, I read a bit about it and tried to understand it but still didn't fully understand, then with our 2nd Angel, I had done everything I was supposed to do and it still happened, so I read a lot more and found out that there was nothing else I could really do to prevent it, I had done everything, it was just meant to be, which still breaks my heart to say.
We have had some test results back and apparently it is not a chromosomal problem, which is supposed to be best case scenario, so therefor it is not something between my husband and I, but there is something happening after we have conceived.... it is so difficult to try and think that everything will be OK when we don't really understand how else we can try and fix it.
I have booked in to see a gentic counseller at Monash Medical Centre, so I am hopeing that all the test results will be back by then and they can shed some light on what is happening.
Your little boy is gorgeous, you should be very proud. Thanks for your post.
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