Been doing some research and I'm worried out of my mind. The doctor in hospital knows it is Long QT Syndrome because it is diagnosed by an ECG, why on earth wouldn't he have told me and why wouldn't they do something straight away, DD shouldn't be waiting here at home. This condition causes sudden death in children and young adults. DS18 has had some fainting spells over the years, I can't believe this is happening. I feel so horrible and guilty because I know it's from my side of the family, I just want to take all my children somewhere right now to also be checked. I feel completely helpless.

Regards,
Dianne