Been doing some research and I'm worried out of my mind. The doctor in hospital knows it is Long QT Syndrome because it is diagnosed by an ECG, why on earth wouldn't he have told me and why wouldn't they do something straight away, DD shouldn't be waiting here at home. This condition causes sudden death in children and young adults. DS18 has had some fainting spells over the years, I can't believe this is happening. I feel so horrible and guilty because I know it's from my side of the family, I just want to take all my children somewhere right now to also be checked. I feel completely helpless.
I'm sorry you are going through this, and so worried. I don't think the dr you saw could definitely say whether it is or is not Long QT, but something he saw on the ECG made him think it was worth looking into. I think there is more testing needed to confirm the syndrome. I know the google searches don't look good, but try not to stress too much until you talk to the drs. We can't do much about genetics, but you got your dd checked out when she needed to, and you are being proactive in getting things looked at. That's the best you can do.
Re: DD12 had an abnormal ECG
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