I'm sorry you are going through this, and so worried. I don't think the dr you saw could definitely say whether it is or is not Long QT, but something he saw on the ECG made him think it was worth looking into. I think there is more testing needed to confirm the syndrome. I know the google searches don't look good, but try not to stress too much until you talk to the drs. We can't do much about genetics, but you got your dd checked out when she needed to, and you are being proactive in getting things looked at. That's the best you can do.
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