hi amygirl
i'm so pleased to hear from you, thought i was the only one even tho my dr keeps saying lots of people have families and epilepsy!
i'm now 11 weeks pg after taking a long time to fall, and due to have ultrasound next week. feeling a little anxious because of increased risks of problems from meds but dr assures me i'm on well below the risky dose, and have been taking high dose folate for over a year. am finding this pg much more difficult than first, but not sure that i can blame meds for that, as i have a 2 and a half year old now!
i have full blown tonic clonic seizures in my sleep, very frightening for DH. however i have only had 4 episodes that we know of. i lived by myself for several years and suspect i first started having them then, but no witnesses! nothing has shown on any tests i have had. i haven't had a seizure for 2+ years now, but the last one was when DS was 5 months old and i was tired and unwell. unfortunately i was carrying him to bed when it occured, frightening us all badly but not causing any harm. this is the main reason for staying on meds this time, my husband worries alot if i'm not on them.
i do drive, tho dr said if i chose to go off meds i would not be allowed to. i have had periods where i have not been allowed to, such as when first diagnosed, but because of the nocturnal nature of my seizures, they have decided it is not a risk while they are controlled.
i much prefer the valpro over tegretol, which was the first med i took. the side effects and risks to the baby are much less and the seizures are under control at a low dose.
i've rambled abit too, but i hope you'll keep in contact!
good luck