My Mum had it in 1998 deteriorated extremely quickly over a 48 hour period and was airlifted by the Flying Doctors from Cobar to RPA Sydney. She was on Life Support in the ICU for a few days and wasn't expected to live. Her recovery was slow, painful and difficult but she did recover! It took about 10 weeks for her to start walking again with her frame, lots of rehabilitation, physio etc - I don't remember ALOT of the specific details as I was only 12 and it was only 6 months after my Father was killed so things were pretty traumatic all round. It is a scary and rare condition however is definitely survivable and I daresay now 12 years later they would have done alot more research than they had back then?? I hope she's ok hun, stay positive and keep by her side, she's going to need you in the coming months. All my thoughts and prayers are with you, definitely not something you'd wish upon someone but definitely something that she can fight through!! xox
I've never even heard of it but I thought I would offer you a
My friend has lupus which is probably nothing compared to this but I know how much I worry about her sometimes. So just know I am thinking of both you and your friend hun!
x
I've been able to have a bit of a read into it. Its good to know more about it & thanks for sharing your experiences.
I live 10 hours away from her, so can't be with her, & don't know very much about what stage she's at, or how far she is into it. I don't even have a number for her atm, been waiting for her to ring me.
I'm getting second hand news, from her mum to my mum. Her mum is up here too, so I'm not even sure how much she knows about where she is at. I'd think she knows a bit about it though being a nurse.
I'm taking from my reading that she probably won't actually 'fully' recover? She works in disability, was doing her RN last I heard, as well as doing hard physical work in the shearing sheds when needing a break from disability. Do you think she'd be able to return to these types of jobs? I'm guessing that probably depends on the person & their recovery though, huh.
Mum seems to think that being as fit as she would be after 5 months in the sheds, it might not hit her as hard & she might be ok, but I'm not so sure. Now I've read about it, I don't think that'd matter much at all.
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