My Mum had it in 1998 deteriorated extremely quickly over a 48 hour period and was airlifted by the Flying Doctors from Cobar to RPA Sydney. She was on Life Support in the ICU for a few days and wasn't expected to live. Her recovery was slow, painful and difficult but she did recover! It took about 10 weeks for her to start walking again with her frame, lots of rehabilitation, physio etc - I don't remember ALOT of the specific details as I was only 12 and it was only 6 months after my Father was killed so things were pretty traumatic all round. It is a scary and rare condition however is definitely survivable and I daresay now 12 years later they would have done alot more research than they had back then?? I hope she's ok hun, stay positive and keep by her side, she's going to need you in the coming months. All my thoughts and prayers are with you, definitely not something you'd wish upon someone but definitely something that she can fight through!! xox