Wow Yael. That is freaky my dear!
I have slept walked a few times, i always talk in my sleep and i snore so bad!
I haven't had an xray of my throat as yet. The second ENT surgeon said that i have nothing physically too wrong that he could pinpoint which could cause mild sleep apnoea and my excessive daytime sleepiness.
I have overbite, so my lower jaw sits just a tad back from my upper jaw and th second ENT specialist said that could be a reason of my gagging/choking at night when all the muscles relax and my jaw falls back when asleep. He didn't mention the dental splint, like the first ENT surgeon had (no way am i having that splint in to keep my jaw forward!). My soft palate and tonsils are okay, so there is no blockage in my throat either.
I had an appt with my booby surgeon yesterday and i mentioned it the septum thing to him as i want to get plastic surgery on my nose too at the same time, and he said that in most cases a deviated septum doesn't need to be corrected as it really isn't doing too much damage, so he gave me a referral to get a CT scan of the face done, but he was more than happy to do it
Oh no, the second ENT mentioned that it is possible narcolepsy with all his findings and the stuff i told him about the history. He did say that anti=depressants can cause excessive sleep too, but i told him that my symptoms began waaaaaaaaaaaay before then.
DH also has a minor overbite, and normal tonsils etc, but the thing is that everything looked normal before the x-rays, and nobody believed him about the sleep apnoea, until he demanded a referral to a sleep specalists and then when he saw that dr he demanded a sleep study (after which he went back with the xrays and the sleep study results, and they were like, oh golly, you do have really bad apnoea!)
So i'm saying everyone might tell you that it looks normal, but xrays to help, and trust your instinct, you know it isn't 'normal', so keep going until you find somebody who can help you.
I am so over it. I haven't had a good night's sleep for the past 3 nights as DD is not sleeping well atm. Lack of sleep can most people of the edge, but for me it is 10 times worse. I am so sleepy all the time. I find that it is exacerbating my depression too. I tell DH that i need to sleep in the arvo after work and he cracks it. I tell him that i have an illness and he makes fun of it by saying "well you have all these tests and reports and drs to say that you can sleep a lot"
I need sleep. I am really getting quite irritated that i can't sleep in the arvo and i am so sleepless. Sleeplessness really wears me out. I become psycho *****!
Oh TD, what you are going through sounds awful. I am glad you have that appointment booked and I hope you find the answers you need. I can well sympathise with your daytime sleepiness and how it gets totally out of control when the little ones keep you up!
As it happens I am booked in for a sleep study on Friday for suspected Periodic Limb Movement Disorder. I think I have had it all my life but now that I have had perpetual sleep disturbance since the boy was born, I am also really taking strain. I know it isn't the same, but trying to operate when you have have a night of disturbed rest because of little ones AND a medical condition is just the pits . Big - please keep us posted on any developments x
So i went to the sleep physician on Wednesday night.
He is quite certain that i have narcolepsy and wants to assess the degree of it. He has ordered another sleep test as well as a multiple sleep latency test the next day at the Epworth.
He said, with those results he will give me a stimulant drug to keep the brain awake during the day. It will be by trial and error until we hit the right dose, where i will be able to sleep during the night and be quite functionable during the day.
I was so happy. Now i need to organise these tests. My PHI isn't 1 year old yet, so i need forms to be filled be out by the drs otherwise i will need to get the test done at the Alfred.
Reply With Quote
- please keep us posted on any developments x
Bookmarks