I was on plaquenil for a while - it was great while it worked, but I only got around 12 months from it. I'm told it's not safe during pregnancy, too.
Babyjoy, it's stories like yours that really make me appreciate just how wonderful my rheumy is. From the start it's been a team effort. He gives me all the info on the drugs, and helps me decide which one I'm going to use. He gives me instructions on how to vary doses and then sends me away to manage my pain within those instructions. None of this "you will take XX amount of YY drug and I'll see you in a few months".
Quick summary of the drug options I was given - slow acting disease modifying drugs were plaquenil, salazopyrin and methotrexate. Of those, I'm told that salazopyrin is the only one that's safe during pregnancy. I haven't looked at the breast feeding aspect yet - I'll worry about that when I can get pregnant and stay pregnant!
When it comes to quick-acting pain-relief type things - prednisone is safe in pregnancy, and so is paracetamol/codeine. NSAIDs of all types are pretty much out (ibuprofen, naprosyn, mobic, etc). Again, unsure about the breast feeding aspect of those.
If anyone's in Sydney and wants the details of a fantastic rheumy - let me know, I'm happy to pass them on. He has rooms in Castle Hill and Concord, from memory.
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