Charlie was born in Canberra by surpise I was here on holidays and to send my furniture up to Townsville as I use to live here.
Charlie has had 6 blood transfusions sor far and today is his fourth attempt on CPAP as he has been ventilated for 6 weeks. He suffers from Chronic lung disease but nothing else major. There have been two infections one in his chest and one in his stomach which both have been treated and I hope are gone. When he has his stomach infection they stopped feeding him for a about 5 days and hes just started feeding again hes upto 6 mils every two hours and before his infection he was at 12 mils every two hours.
He was born at 700grams and went down to 580gram and now weight 1170grams....I am so proud of my boy.
Things are tough but Im coping very well with the support of my family up here unfortunately his dad is still up in qld and flys down to Canberra approx every two weeks.
I look forward to hearing about your premature baby stories.
He is doing well Chronic Lung Disease (CLD) is almost a given with babies as prem as yours (& mine). Immy has it too... She had a really tough first year with about 5 admissions back to hospital for infections. Immy had one infection whilst in hospital.
Are you expressing? Those times off ventilation and onto cpap are scary... So sending you understanding hugs.
I am glad you've found BB - you will find much support here my love.
He sounds like he is doing well Jessie, still a long way to go, but he has come through a very difficult period, and NICU is such a rollercoaster ride
Going to CPAP is a huge step, that is wonderful news, and it is awesome to hear he is getting your milk, that must have been a wonderful day when he got his first 1ml
For your milk are you taking any medication to help, expressing alone can be extremely difficult, it was a very long journey for me to exclusively BF DD, but in the end I was on a high dose of Motilium and it made all the difference, I met with a specialist GP/LC and she said that I could actually take a lot more than I was on and once we got going on the higher dose it made a huge difference.
You may need a bit more help until Charlie is big enough to help get the extra milk happening
Take care xxoo
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Chronic Lung Disease (CLD) is almost a given with babies as prem as yours (& mine). Immy has it too... She had a really tough first year with about 5 admissions back to hospital for infections. Immy had one infection whilst in hospital. 
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