It has been a very long journey and one that I never thought I would have to travel. We are extremly lucky that for a 25 weeker Angus only has CLD. One week before discharge, the neonatologist (sp?) decided that enough was enough and turned off his O2and to everyone's amazement, he was fine and breathing totally on his own.
I often sit with my beautiful baby at my breast in tears...tears of joy and thanks that he actually made it home...both DD1&2 have decided that they want to become nurses when they grow up DD2 only said to me yesterday that she wanted to help babies just like the nurses helped Angus. They too had been moved by how amazing the staff are in the NICU and what special people they are...how do you thank such a special group of people that saved the life of your child?????????
Maxx was born at 25w and also coped several infections infact 8, had collapsed lungs. He just turned one and was in hosp for 153 days. He came home on oxygen at the end of Feb and has been off it now for about 3 months.
You get use to it but don't know how many times I nearly ripped his face off from standing on the damn cord. The routine is the same as having a baby home without oxygen etc you just have to lug the cylinders around when you go out.
If you want any other help or info just ask or pm me.....very happy to help!
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