*Sigh*
Having a 'guilty' day today. I'm so sick of Hannah being 'different'. Playgroup has really helped her come out of her shell (as much as a 1yo can have a shell), but it's the mother's constant reminding their kids "Don't feed Hannah!" "Remember not to offer Hannah food." "Hannah can't have food, she's sick".
I mean, if it's such a big deal that Hannah is there and your kids can't share their Shapes, Twisties, Chips, etc, bring healthier food. Hannah can eat fruit! ....sometimes. Depending on how much natural sugar she's had in the previous 3 days. I don't expect parents to accommodate Hannah's illness, but I hate having to watch her like a hawk at snacktime. And then I have to be a cow and take food off her if a kid gives her something.
There's kids with their chocolate muffins/hundreds&thousand bikkies. There's Hannah with a few dates/plain biscuit.
I got told the other day that I shouldn't treat DS any differently to any other kid. I blasted them. "What the hell am I supposed to do? Here DS, here's a bag of lollies. Here Hannah, here's some carrot sticks!?"
Gah. I'm so frustrated.
I don't like kids eating junk anyway, but sometimes I *love* to give Hannah a biscuit with cream filling. Some ice-cream or jelly as a treat. But, I know if I do that I'll be up with a child, screaming for hours as her bowel and stomach swell up. Going into overdrive as they desperately try to rid her body of the sugars.
Timing how long it's taking for her body to start 'de-sugaring'. Constantly checking her stomach to make sure it's not swelling up too much. Making sure you still have her surgeons number in your mobile. It's a nightmare.
I love her so much and I'm so grateful to have to her. But gastroschisis sucks..
why must my pregnancies attack my liver!
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